for over 6-7 years now. I written on a forum about this before but just hadd to write one again. Its hard to say but doctors have no idea what's wrong with me.I see so mnay people dealing with this problem and it seems like theres no diagnosis. It just strated outta the blue I went to take a deep breath
ALL DAY LONG. I had reached the point when i was staying home in my bed just hoping i would die so it would stop. After 2 years or so it seemed to just go away. It then came back right after i smoked a cigarette . Ever since then its been an ongoing struggle. I feel as if i have no control of my life, and im constantly thinking of my breathing. I feel hopeless and feel as if no one understands what im going through or that i have this disease that doctors cant detect. My doctor has put me on xanax for anxiety and it seemed to cut the edge off a lil but its still there. Its not as bad as when i first got it but it still disrupts my life. I can only work 2 days, i don't go to school and i don't have much of a happy life .I've gone to cardiologist, ent's, gi's, pulmonary doctors. I've gone through xrays, PFT, EKG, stress tests, endoscopy . Only thing i have is GERD/LPR with sinsation of lump in throat and a very small irregular heart beat. I also am constantly clearing my throat.I heard that can be because of the Gerd/LPR. I just took a new PFT test and my breathing is normal. i did have a deviated septum but got that fixed..My lung specialist says its just all in my head and that i have this because ive become aware of my breathing pattern. i've used advair, singular and breathing pumps for asthma with no results. when im sitting or laying down its seems to be fine but when i stand up or move it kicks in more. I'm losing hope on what's going on with me. Does anyone have this?If so can anyone recommend anything else i should look for? the only thing i really want to do is a MRI or CT scan but doctors say 99 percent sure nothing will show.Has anyone heard of chronic hyperventilation syndrome? or phrenic nerve damage? if anyone can be of help please email me or post a message?
Hi. I just read your blog. I have been feeling the exact same way. I am wondering if you have found a diagnosis yet? I did see one dr who wants me tested for pulmonary hypertension. A terrible test to diagnose a terrible, fatal illness. The 2nd pulmonologist that I have been seeing says that it is reflux and asthma, and I don't need the test done for pulmonary hypertension, but, like you, I am so nervous and anxious all of the time, that I just need to have the test done and rule out the worst stuff so I can relax a little. I am married to a doctor and he is stumped and tired of listening to me complain. This started 15 months for me during a time that I was very stressed out, but something just seems off to me. I am just so nervous to have the test done to rule out pulmonary hypertension, but I know i need to. Have you had that done? ( That is where you go to a hospital and they put a line in your artery up to near your heart then have you run on a treadmill to see what happens to your lungs during exertion.) I have hope after reading your symptoms that perhaps I am dealing with lph, and gerd, like my 2nd dr says. I have had my stomach scoped and it has been determined that I do have a lot of reflux. I have been on meds for months for this, and it is not resolving. I am on many inhalers for asthma, and am getting scared and feeling hopeless. Please let me know if you have gotten a good diagnosis and treatment yet. Best of luck