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Effects of gastroschisis in adult life

Effects of gastroschisis in adult life

Hello, I am 23 years old and I am having serious issues and I don't know where to turn. I was born with gastroschisis and repaired with no complications that I know of. As a child I would always cry after eating and have constant bowel problems as I grew up (abd pain/constipation). I am now in my 20's and I feel like I'm 90. I have pain 24/7, I am always bloated and I have a BM like once a week if I'm lucky. I have seen 4 gastro's, had a colonoscopy, small bowel study and found that I have an intestinal malrotation (large intestine on the left, small on the right) but that nothing they saw explains my pain, no obstruction, volvulus, etc. I have been given fiber, magnesium, colace and so on and nothing works. I eat healthy and take care of my body otherwise. I am missing work and school and the rest of my life because I am always in pain. No one will help me and every Dr. I have seen seems to blow off my past history and my current findings. Is this just IBS-C or maybe something worse? What can I do? I live in a very small town with little options here.
Thank you very much for any help you can give.
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Avatar_m_tn
I am 33 years old and also have gastroschisis.  Many of the same symptoms you describe I am also experiencing so you are not alone.  I was recently diagnosed with a severe case of gallstones along with common bile duct and hepatic obstructions which explain a lot of the pain I am in.  Before the onset of this pain, I had always experienced mild to severe pain in my abdomen, had trouble with bowel movements or urination, have always been underweight to an unhealthy degree (I graduated high school at 98 pounds) and my scars are sensitive to this day.  If I run my hands over it for any period of time it feels like the entire thing will explode open.  I need to have my gulbladder removed immediately and the obstructions removed, but have no insurance yet and even when i do get it, the operation may not be covered or I may have to wait which really is not an option.  The likely option is I will end up in the ER and have an emergency operation done which may mean it is already too late.  I worry that you may have something similar and that you should have your gulbladder checked out especially since stones are more prevalent in women than in men.  An ultrasound or CT scan is most likely in order.  My pain is located mostly in the upper right quadrant of my abdomen and recently my palms have turned almost entirely red which was noticeable because I have always been so pale.  My pain is getting worse each day and college work is being put off as well as general activities because I am always in pain and tired and running a low to mid grade fever off and on, with more episodes at night.  My thoughts and prayers are with you and I hope you will keep me updated.
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Avatar_f_tn
I'm a 27 year old born in1984 female. I to had this I have pain everyday the test always come out fine when I go to the hospital. I seen these post were awhile ago how do I manage my pain I think the doctors think I'm crazy I'm so sick of not being able to function like everyone else can u give me some advice
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Avatar_f_tn
I'm a 27 year old born in1984 female. I to had this I have pain everyday the test always come out fine when I go to the hospital. I seen these post were awhile ago how do I manage my pain I think the doctors think I'm crazy I'm so sick of not being able to function like everyone else can u give me some advice
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