I am a 28 year old
femaleCondoms
Female condoms
Female sexual dysfunction who was diagnosed with EG four years ago. Since then, I have had 2 operations to remove 95% of my stomach, due to non-healing ulcers. Recently, a large ulcer, with eosinophilic infiltration, was found on my stomach remnant. I am on the "
prednisonePrednisone
Prednisone anhydrous,
doxepinDoxepin
Doxepin hydrochloride (to lower mast cell count),
zyrtecZyrtec
Zyrtec dye-free sugar-free
Zyrtec hives
Zyrtec-d,
prevacidPrevacid
Prevacid i.v.
Prevacid naprapac 375
Prevacid naprapac 500
Prevacid solutab,
zantacZantac
Zantac 150
Zantac 300
Zantac 300 geldose
Zantac 75
Zantac efferdose
Zantac geldose" treatment, and am fed through a jtube, as I am now unable to digest any solid food. The drug therapy has not helped in the past and the doctors are thinking that removal of the rest of the stomach may be necessary. Is there any other possible treatments that I could try? I have been unable to eat real food for over 3 years and am down to 90 lbs
(5'6"). Also, is there any information available about stomach transplants, either human to human or pig to human? I am at my wits end and willing to try anything.
PS. The doctors do not believe my disease is caused by an allergy, as I have had all the tests. In addition, I was born with a very high eosinophil count.
Thanks!
What formula are you on? There are several of us EG/EE/EC patients on onelist who are finding that some of the supposed" elemental" formulas are really NOT.
I welcome you to join us, you might find some more helpful information and you will find several other patients with EG.. Just go to onelist.com and look up the eosinophilgastro group.
Steph.