Hello, I am a walking medical issue!!! :O) Early last year I became very ill. I was nauseated all the time. Had vomiting and diarrhea. No appetite. I didnt eat for 2 weeks. My stomach always felt like when you over eat and it feels painfully bloated. By the end of the two weeks I wasnt vomiting anymore which seemed to relieve the "full" feeling I had. I was sent to a gastro Dr. and he did an upper endoscope with normal results. Put me on Zofran for the nausea and said wait and see.
I was admitted into the hospital for 2 weeks where I had a colonoscopy, Lower GI barium series and a gastric emptying study. The emptying study showed significant delay. All other test were normal. I also had a tube up my nose to empty my stomach. Food intake was just the "see through" stuff. Easier to pump I guess!!
In the end my Gastro Dr. said I had gotten a viral IBS that initiated Gastroparesis. He used a disease named after a person that I cannot remember. Anyway, I am still on Zofran for nausea and Lyrica to "jump start" my stomach. I am digesting now but I do have flare ups now and then. He also said my stomach shrank during this whole thing. Is that possible? Is Gastroparesis a permanant thing? Is there a disease that causes this paresis? I am so in the dark about this. I was very sick in the hospital and just wanted to rest. I retained some of the things my Dr. said but lost some of it too. If anyone knows anything about this problem or suffers it as well I would really like to hear about it.
The GI suspected I had gastroparesis once, and suggested that it would, in time, heal itself. He thought it may have been caused by nerve damage resulting from an episode in which I was violently ill for several hours.
My emptying exam came back okay, but I thought you might like to know what my doctor said about it. More specifically, he told me it might take a couple of years as nerves are slow to regenerate, but it would heal in time. And in the interim it could be treated with medication.
Hi I am a Mom with a 11 year old that has severe gasteoparesis - and her delayed gastric emptying test (when last taken) was showing her stomach was almost non functioning - she has been able to get by with this disease and we have found that 1 medicine helps but at times nothing helps - she also has dismotility issues - Pseudo Obstruction - We have been dealing with this since she was 2 but she works thru her pain Biofeeback worked real well for her for a while .... classical music - etc -- visualization - meditation
The other thing that helps is when "she can feel it in her throat" she cuts out foods and liquids - for a rest - but that can be a double edged sword - because she seems when she is in an episode she dehydrates in hours .... she has a g tube in her stomach - a permanent Bard which helps with decompression - hydration and full flushing of her system when she gets a blockage .....
She also deals with what we call wrong signals - she can be in a full episode and she has the constant feeling of being starving - we explain it that her brain is giving her stomach the wrong signal -
WE have a great Pedi Gi in San Francisco who can only give direction and moral support because there is no cure and we are happy that she is able to live a normal life -Cheerleader - Volleyball Player - Snow Ski's goes to sleep over camp - for 2 weeks every summer ...
Our Dr thinks we should go to Kansas and see Dr Paul Hyman to see if he has any tricks -
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