I seek suggestions on living w/IBD and and Diabetes... Four yrs. ago, I was diagnosed with crohns/ulcerative colitis. After a yr. of no symptons, I thought I was cured! (occassionally, some foods caused cramps and diarrea,(lasting only a few hrs.) So I never refilled the asacol. Three yrs. later, the IBD is back and WORSE than before! This flare up begun 6 mos. ago. I didn't know the disease could go in remission! Mornings are horrible! It's HRS. B/4 I can go anywhere or feel better. Diarrea, blood and nausea, sometimes, I barely make it to the bathroom. And when I eat, it starts all over again. On a good day, these episodes are over after about 4 trips to toilet. (or about an hr.) Any more than that, guaranteed to see blood.) During my 3 yr. remission period, I learned I'm a diabetic.(pills only, no insullin) This poses another problem, If I eat, I get sick, if I don't, sugarvgets too low. Below 80, I feel it. Within 10-20 min. it drops so low, so FAST, you won't be able to walk/drive, become confused and can go in a coma. I've become so frustrated and depressed.
Having either, one, IBD or DIABETES, lowers your immune system. It can take mos. to heal from flu,cuts etc.! (This past summer, I was on antibiotics 3 mos!) I am at witts end, not knowing what to do/eat. Can't make plans, cuz you never know from day to day how you're going to feel. And nothings more embarrassing than to be in public, and unable to get to a restroom. Once you feel the cramp, it's usually too late! ALWAYS bring spare clothes, and something to clean yourself with!!!
I feel your frustration,and go through what you are right now.I had colonoscopy,showed inflammaton,but gi doc said its ibs.Last 7 months have had severe chronic stabbing abdomial pain,bloating,trapped gas,nausea,bowel movements alternate,I never know on daily basis if it is diarrhea,or fecal impaction I'm prone too,rectal pain ,and recently started to pass blood clots,Lost over 50lbs,hair loss,cant eat ,been on ensure,yogurt,bland diet.Sugar is also high,if i dont eat,I get weak and sick,I do eat..I feel worse and suffer.I never know when I can leave the house,have had few "accidents" so now I carry tote bag with clean clothes,babywipes,imodium,and pads or adult diapers,when I work the nerve up to go anywhere,I get panic attacks just thought of leaving home.I'm 28,use to be social,work,now I'm housebound and afraid to leave house.It mentally takes it toll.I was working as beautican,but cutting hair and when that cramp hits ya having to run to bathroom in middle of haircut and end having another worker finish my job,I lost clients,and was discouraged so I quit.Tomorrow I go for barium x ray,hoping for some answer and relief,I never experienced this much pain before,so something tells me its more than IBS,IBS can be painful..but i dont think this is my source of pain along with other symptoms.
This is a good place for support.I didnt relize how common this was and other ppl going through same thing.I dont have much advice...I wish I did,I'm seeking advice too..but its something I guess you learn to deal with,or just hope and pray remission comes quickly.Learn ways to relax,some days I will leave house determined to not let this rule or over take my life,I've missed out on alot of events..my nephew's baptism,niece 3rd b-day party few weeks ago,so I tried xanax,it helps me to relax and the anxiety.You might benefit from it,I'm thinking about going back on paxil.At 28 the instinct to settle down and want a family is kicking in,but this is embrassing so I dont date anymore,forgot about dinner...lol,that would be interesting date..haha,
Sorry so long,but when I read your post I started to cry..were both at our wits end,I hope you feel better soon,hopefully go into "remission" take care!
I've had uc for 10 years and I have been having pain in the lower part of my right side,stool is different not runny ,not hard just not normal for me .Theres no blood or urgency ,I can't lay on my right side or it feels like I'm cutting off circulation. I also have foggy feeling in my head ,feeling of racing heart.I've been to er twice blood work normal,ekg and heart enzme normal ct scan with iv contrast on abdomen normal...... so I'm a walking medical mystery. I've started taking asacol the pain has decreased almost gone, so I wonder is this a flare up but without runny,bloody ,mucus stool. Also it was painful to sit ,it felt like my whole insides were going to fall out.......... I've hadultra sound on uterus all normal,please help I don't have time to feel bad being a mother of four........... kellie udisky
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