My daughter is very sick (1 1/2 years). Recently lost over 20 lbs in 2 1/2 weeks. I asked a local radiologist to tell me how I would know if anything was wrong with her celiac or mesenteric arteries. He looked at her recent CT scan and saw that her SMA was angled at 17-18% -which is narrow and suggestive of SMA Syndrome. He completed an UGI - standing and it was abnormal. Barium backwashed at the duodenum with only a small trickle going through. Solid food did not pass at all. She went to a major univeristy medical center and they repeated the UGI series - but did it routinely (lying down) and took hourly pictures. It was normal. The radiololgist from the previous facility said she needed to be standing. All other tests at the major university were normal - except a sitting GES. When repeated lying down, it was normal. Is it possible that she would need to be standing to see this SMA Syndrome? I need some help from someone that specializes in SMA Syndrome and may know more about it. Apparently, not many people are familiar with it. Can you offer insight?
Hi there. So sorry to hear about your daughter being diagnosed with SMA Syndrome. Please check out the SMAS Group on Facebook... you'll find over 100 survivors there... some have already surgery for it (laparoscopic duodenojeujenostomy) while others are still going through tests, feeding tubes, etc... The group is an amazing source of information, especially the discussion boards on there. They are also a wonderful support group and offer friendship. Here is the link: http://www.facebook.com/topic.php?topic=24897&post=191564&uid=170641319067#!/group.php?gid=170641319067. These folks "get" it because they "have" it. Wishing you much luck and sending prayers your way. --
Thank you for the facebook link!! My 18 yr old was just diagnosed after 2 yrs of daily vomitting and being told she was anorexic when we knew she wasnt!! She has been in the hospital for 9 days on a feeding tube with no weight gain and is in excruciating pain!! Any and all ideas for help are welcome.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.