Aa
Lymphonodular Hyperplasia, Eosinophilia.
My now 4 year old daughter was diagnosed at 18 months with Lymphonodular Hyperplasia, Failure To Thrive, Eosinophilia, Chronic Gastritis, 7 Focal Ulcers in her Stomach, Duodenum, Ascending Colon, Transcending Colon, Transverse Colon, and Sigmoid Colon. Her Terminal Ileum was perfectly healthy and normal. Because of the Failure To Thrive, she underwent Bone-Age tests, and the physicians explained to me that her bone age was 9 months behind. For those of you who don't understand these terms, Lymphonodular Hyperplasia is chronic severe inflammation of the gastrointestinal tract, and is believed to be caused by immunological response. Eosinophilia is a blood disorder where the eosinophils (white blood cell that fights infection and parasites in the intestines) are at a deadly high level because the immune system is attacking the g.i. tract. Failure To Thrive is a term used when a child doesn't grow and gain weight to the standards of their age. I really don't understand why these diseases struck my daughter, and I will probably never know a specific reason why. If anyone reading this has experience with or has a family member with any of the above, feel free to contact me. I would greatly appreciate any input. Thank you.
Artificial vitamins* is what I meant in previous post. Also gut bacteria releases histamine, especially when fed its favorite foods like oats, beans, potatoes. Well grains. So when we stopped probiotics he got better.
My son almost 2 years got LNH from a stomach bug. First virus and since he was sensitive when I gave him the already tolerated whole milk yogurt he got hives all over then I gave. One broth to help heal his gut but it made it worse bc it has high histamine. Reason we get hives bc our histamine is higher than normal so I was essentially putting wood to fire. So I stopped but it was too late bc Colonoscopy showed LNH. So after a lot of research bc doctors don't know what to do, I found he has histamine intolerance. Most foods have histamine. He was already on formula to help supplement since he was not tolerate foods so I only do Elecare Jr (no histamine no glucose), Arugula juice (little goes a long way and it's an antihistamine) and carrot juice. Hyperplasia can be beginning signs of cancer and carrot juice cures cancer. Hyperplasia is overproduction of cells and cells release histamine. Now his calprotectin is at normal levels 55. Before it was 170. Lucas has had LNH for almost 4 months so I know his healing is coming soon!!!!!! Steroids may help by suppressing the immune system to stop producing those histamine realesing cells but his doc didn't RX bc his inflammation is now in norma range. Steroids deplete your vitamins so increase the vitamin intake while on them. This will decrease all steroids side effects like trouble sleeping and hunger. They're actually hungry for vitamins! So I know this high vitamin intake is healing my son!! It's proved with the calprotectin stool test. We just have to be patient and allow God to continue healing him.
1 Comments
Oh and articulate vitamins are a big No no! He got diarrhea from it. Also the fish oil I was giving him had histamine. So the vitamins have to be natural from the juice I mentioned and the formula.
That finding alone is unfortunately just an indicator, so it would be difficult to jump from there to say 'your daughter is suffering from 'x.'' It suggests her immune system is extremely active and reacting to 'something' she has been exposed to - bacterial, viral or possibly foods. Hopefully, with the results of any other tests that have been done, a family history, and your input on what her symptoms are and what you've observed, when the results of the biopsies are ready the docs will be able to put everything together to tell you what can be done to remedy the situation.
hi my daughter has has bad stomach now for a year constant diareaha, to the point where she eats something and it comes straight back out, stomach pains, doesnt really want to eat and when she does its very small dinners took a year of going bk and forth to hospitals and drs and she had bioposys yesterday and im re reading the notes and it says that from the biopsies taken there was some lymphonodular hyperplasia in the ileum? but says i have to wait for the results to come bk to find out more. can any 1 help me with what this is or what might happen??? its effecting her so much where she doesnt want to leave the house because she wants to be by a toilet its so hard at meal times to coz i want her to eat but she doesnt want to my email is ***@**** if any one wants to email me with info that would be great
i am ost 4 words as i am going through so much check help sweet suryaa singh on facebook and google suryaa singh trinidad newsday pray that is all we can do
Hi
My son who is now 2 and four months old also had Jejeunal atresia with volvulus and was operated on at 2 days old. He developed failure to thrive, lymphonodular hyperplasia, reflux disease and a stomach ulcer. He has bouts when he vomits and has diahrea and bouts when he is better (never 100 percent though).
The doctors at the time wanted to give him TPN, but that will only make them have eating problems later so I fed him 60mls every hour and a half day and night, but by 6 months he drank 200mls five or six times a day.
What you need to do is give her small bits of food all day long - as an when she wants it. Little and often is the key, not large meals like others have. For example, I give my son a piece of banana, then 120mls of his soy formula in the morning, a bit of chicken and some bread, rice or chips. Later I give him some cucumber or tomato to nibble on, or some orange. (Also soy formula as he wants). In the evening he eats 2 fish fingers, or a snitzel with something else. I give him a liquid multivitamin in one of his bottles and a little iron in another too. It's not perfect, but he is feeling better. For the last year though he has not put on any weight and he is with diarrhea again so we are waiting for a gastro.
I give my son probiotics too. I find he cannot eat if he does not empty his bowel daily.
Hope this helps and that your little one gets well soon.
My son who is now 2 and four months old also had Jejeunal atresia with volvulus and was operated on at 2 days old. He developed failure to thrive, lymphonodular hyperplasia, reflux disease and a stomach ulcer. He has bouts when he vomits and has diahrea and bouts when he is better (never 100 percent though).
The doctors at the time wanted to give him TPN, but that will only make them have eating problems later so I fed him 60mls every hour and a half day and night, but by 6 months he drank 200mls five or six times a day.
What you need to do is give her small bits of food all day long - as an when she wants it. Little and often is the key, not large meals like others have. For example, I give my son a piece of banana, then 120mls of his soy formula in the morning, a bit of chicken and some bread, rice or chips. Later I give him some cucumber or tomato to nibble on, or some orange. (Also soy formula as he wants). In the evening he eats 2 fish fingers, or a snitzel with something else. I give him a liquid multivitamin in one of his bottles and a little iron in another too. It's not perfect, but he is feeling better. For the last year though he has not put on any weight and he is with diarrhea again so we are waiting for a gastro.
I give my son probiotics too. I find he cannot eat if he does not empty his bowel daily.
Hope this helps and that your little one gets well soon.
Hi all I have three children with an eosinophilic disorder but now have recieved the results from my son's last biopsies saying that he also has lymphonodular hyperplasia, can anybody offer any further advice on this. WE are ok with the eosinophil part of things but not this addational problem.
BOTH OF MY KIDS HAVE SOMETHING WITH THERE GI TRACTS AND ITS A BUMMER MY DAUGHTER THEY FOUND SOMETHING IN HER SMALL LARGE INTENSESE DONT KNOW WAT TO THINK JUST BIOP-SY MY SON TODAY SO GOING AWIRE DONT REALLY KNOW MUCH .. CAN GIVE ME ANSWER MY NAME IS BROOKE
I am so sorry to hear about your daughter.. I have a little daughter with some issues too... I don't know anything about this illness you are describing.. does it only happen to children? Is it similar to crohns? hence the crohns diet.. have they considered TPN ?
My heart goes out to you .. I am very sick myself and I know how tough it is not getting anywhere... It is especially hard for a 4 year old to describe their symptoms and feelings...Can I pray for your family ?
My heart goes out to you .. I am very sick myself and I know how tough it is not getting anywhere... It is especially hard for a 4 year old to describe their symptoms and feelings...Can I pray for your family ?
We've tried everything. The gastroenterologist said that there is little known about her disease and the correct diet is unknown. From the beginning, I have made sure she doesn't eat things that could potentially cause an intestinal blockage, such as corn, seeds, and other things. In other words, she is on the Crohn's diet. Still, she is very ill. I am just curious if Eosinophilia is a part of the Lymphonodular Hyperplasia. Thank you.
Have an Answer?
You are reading content posted in the Gastroenterology Community
Learn which OTC medications can help relieve your digestive troubles.
Is a gluten-free diet right for you?
Discover common causes of and remedies for heartburn.
This common yet mysterious bowel condition plagues millions of Americans
Don't get burned again. Banish nighttime heartburn with these quick tips
Get answers to your top questions about this pervasive digestive problem
