Microscopic Colitis

[valuedinsights]

I was diagnosed with Microscopic Colitis about a month ago.  I'm now taking 9 mgs Entocort daily.
My questions are:

1)  Is this a normal dose for Endocort?

2)  Since being on Endocort, instead of getting adominal pain when my symptoms flair up, it hurts severely to sit down for any extended amount of time.  Is this typical?

3)  Quite often, I have no feeling in my bladder.  Another words, my bladder can be full and I cannot tell I need to go.  I only go when I figure it's about time.  This happens almost EVERY NIGHT sleeping, and SOME days as well.

Any comments would be greatly appreciated.

Scott

Scott


This discussion is related to It hurts when i sit down and get up!.

[valuedinsights]

Thank you for the information.

Scott

[outspoken1]

Do not stop taking this medication without consulting your doctor. Some conditions may become worse when the drug is suddenly stopped. Your dose may need to be gradually decreased to prevent symptoms such as extreme tiredness, weakness, or nausea

[outspoken1]

The recommended dosage is 9 milligrams (three 3-milligram capsules) every morning for up to 8 weeks. Your doctor may reduce the dose to 6 milligrams per day for the last 2 weeks of treatment. If symptoms return, the doctor can prescribe another 8-week course of therapy.
Side effects may include:
Abdominal pain, back pain, dizziness, fatigue, gas, headache, indigestion, nausea, pain, respiratory infection, vomiting
Grapefruit juice can increase the amount of Entocort EC in your blood stream. Do not drink grapefruit juice during your course of therapy with Entocort EC.

[valuedinsights]

Thank you for your reply.

As far as my diet, caffeine is by far the worst, followed by peanuts, and high fats and high fiber. I can have wheat/bread in moderation. If I avoid all of this, I usually do much better. "Sometimes" this diet is hard to follow, and I eat something that I know I shouldn't and my symptoms increase.

Scott

[CalGal]

Scott, there's no 'normal' for the meds. It depends on how you respond to it.

When inflammatory processes occur it's not unusual for the bowel to relay signals to the bladder, but it's something you should talk to your doc about.

Do you also know that some people with MC are helped by diet? Depending on the form of MC that you have, you may want to look into it. The two problematic 'foods' appear to be diary and/or gluten (wheat, rye, barley and oats). Docs haven't exactly 'caught on' to the idea, but if you talk to others on the boards with MC, some find a change of diet can help quite a lot.