My son has stopped eating since his heart surgery

Hi There, my son recently at 18MO suffered a brain injury and has been left with brain damage, in the beginning he lost his suck and swallow but recently was signed off via videofluroscopy with a safe swallow, his brain injury is coming along nicely and he has been left with basil ganglia damage. he recently had a heart operation to repair a vascular ring which was compressing his airway and foodpipe,  He had the double aortic arch repaired, he is 18 months old l. The operation went all to plan lasted 3 hours in total, he was intubated at 9 in the morning and extubated at about 5pm, he was in ICU for 24 Hours and home in 5 days. he has got mild tracheomalacia but never required any medication or anything and the stridor seams to have gone except on excersize when its still present which I am told will take some time. Its been 2 weeks since the opoeration and one thing im concerned about is that although his sickness has stopped instantly he can only tollorate liquids at the minute and is gagging on solids.... he had a bad cough when he came out of ICU which has gone now, no temp or anything though. the doctors think he could have picked up a virus and with intubation etc his throat could be soar still, do you have any other explanation, surely nothing from the operation could have made it worse?

Has anyone been through a similar experiance, please help

[mammo]

I would insist that they check him out and not "assume" what it "may" be.  This is your baby, and you need solid answers as to what is happening, and if his throat is just sore ask what they can give him for that and what liquid foods would be best for now, like Pediasure.  I wish you all the best and take care.

[daveandjulie123]

Thankyou for your comments, I am trying to find someone whos child has been through a simaler experiance, his heart condition is very rare and its difficult to find others thats all. thank you though