I apologize first for the length of this post.
My fiance had an esophagectomy in October 2007 (Ivor-Lewis) due to high grade displaysia. The vagus nerve was removed as were both “flaps” (sphincters?) at top and bottom of stomach, which was pulled up to make the reconnection. All biopsies showed NO cancer.
He had many complications after the surgery, including three bouts of pneumonia, two of which were followed by c. diff, and one which was caused by aspiration. He was actually in a coma for approx. 14 hours. He spent two months in the hospital and one month in a rehabilitation center. Even when he came home, he truly wasn’t ready to be home.
Approx. March 2008, he began vomiting regularly. Mostly this does not consist of food—just foamy clear/white, thick phlegm (?). It seems to be “triggered” by eating, but when he gets going, it takes a very long time for him to stop again. He has made several visits to his regular physician, several visits to the emergency room.
His surgeon dilated him 1.5 cm several weeks ago. He said he didn’t believe the small amount of narrowing that was present was the cause of his gagging/vomiting.
He has now been in the hospital for 11 days. He was taking a large amount of medications (Albuterol, Atrovent, QVAR, Norvasc, Cozaar, Lopressor, Hydralazine, Plavix, Lisinopril, Lipitol, Elavil, Wellbutrin, Duragesic patch, Glucophage, Reglan, Klonopin, a multi vitamin and iron. They doctor(s) have removed some medications and added some medications.
As of this morning, his list of medications was: Duragesic patch, Norvasc, Wellbutrin, Klonopin, Cozaar, Toprol, Protonix, Zofran, Albuterol, Atrovent.
Fortunately, they have determined that he does not need the Glucophage at this time. His regular doctor had told him well before the surgery if he lost weight, this might be the case. Prior to surgery his weight was 236 pounds. He now weighs 150 pounds.
The Duragesic patch was removed a short time ago, but we don’t know if this is the problem.
I guess the question at this point is where should be looking to go from here if this is not medication-related? One of his doctors (a fill-in doctor) even told him that it’s possible for the vagus nerve to grow back…is this true? If so, what can be done about this?
The kicker to this entire story is that his regular doctor is currently in the hospital and has been for the past 10 days! So he is not even getting “treated” by his regular doctor, but his substitute. Over the holiday weekend, it was the substitute for his substitute. To say this is frustrating is an understatement. And quite frankly, I am really scared watching his weight continue to plummet, as well as his spirits, and knowing he is not getting enough nutrition.
PLEASE HELP.