Need help for my 15 year old daughter with gastroparesis

My 15 year old daughter has been diagnosed with gastroparesis.  This has been terrible.  I am worried that this is a life-long problem that she will have to endure.  She is normally a very healthy teenager.  We have seen many doctors and she is on Reglan to help her eat.  Still has stomach pain when she eats.  On a low-fiber, low-fat diet which makes it hard to put weight back on...has lost 15 pounds so far in 3 months.

I am needing a doctor that specializes in this area.  Any good ones out there?

Joyce


This discussion is related to Post viral gastroparesis in children.

[CalGal]

I'd suggest you check with the closest university-associated teaching hospital in your area. That's typically where you'll find docs who are up-to-date on a broad range of GI issues.

[gnorb]

I second CalGal's suggestion. I would also advise to find a gastroparesis support group, online or off. (Yahoo groups has a pretty good GP group.) This way you have one place with a large concentration on people who are knowledgeable about the condition as well as about new treatment options and doctor recommendations.

[kykgrrl]

My son, who is 12 years old, was recently diagnosed with gastroparesis.  If you live anywhere near VCU in Richmond, VA, they have two doctors who treat pediatric gastroparesis.