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Need help for my 15 year old daughter with gastroparesis

My 15 year old daughter has been diagnosed with gastroparesis.  This has been terrible.  I am worried that this is a life-long problem that she will have to endure.  She is normally a very healthy teenager.  We have seen many doctors and she is on Reglan to help her eat.  Still has stomach pain when she eats.  On a low-fiber, low-fat diet which makes it hard to put weight back on...has lost 15 pounds so far in 3 months.

I am needing a doctor that specializes in this area.  Any good ones out there?

Joyce


This discussion is related to Post viral gastroparesis in children.
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Avatar universal
My son, who is 12 years old, was recently diagnosed with gastroparesis.  If you live anywhere near VCU in Richmond, VA, they have two doctors who treat pediatric gastroparesis.
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Avatar universal
I second CalGal's suggestion. I would also advise to find a gastroparesis support group, online or off. (Yahoo groups has a pretty good GP group.) This way you have one place with a large concentration on people who are knowledgeable about the condition as well as about new treatment options and doctor recommendations.
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Avatar universal
I'd suggest you check with the closest university-associated teaching hospital in your area. That's typically where you'll find docs who are up-to-date on a broad range of GI issues.
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