My daughter is 4 and the Pathology report is stating possible GS. The physician is treating it at GS and we are underway with many specialist and in a couple of weeks a gentics specialists. I want to know if there is a certain onset age for people and is my daughter one of the youngest? She has four cysts on her head, one in her neck around an artery, one on each heal, and recently one in her thigh. We will see a Gastroenterologist on Monday to set up testing to check on poylps in her colon. Please send us as much information as you can tell me.