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554409 tn?1218403468

Out of ideas, and at whitts end!!

I am hoping someone might have some ideas here, because both my gastroenterologist and family Dr are out of ideas. I am a 24 year old female, and have been experiencing severe lower right abdominal pain for nearly 7 months now. I have had 2 pelvic/abdominal CT scans, a pelvic/abdominal ultrasound, colonoscopy with biopsies, and a capsule endoscopy that all came back normal. I have had 3 ESR blood tests run that all came back high and a high CRP with mild anemia, taken over the past 3 months. I have lost 15 lbs in the past month and a half, and find it very difficult to eat as I am in pain most severely after eating, though I do experience the pain with out eating as well. I have had almost one bout of diarrhea almost every day since 2004. I have no fever, though I feel feverish and chilly sometimes. I have felt very lethargic, tired, and light headed. My Drs have ruled out Crohn's, IBS, colitis, gonorrhea, syphallis, gall stones, kidney stones, bladder infection, appendicitis, and ovarian cists. My gastro is stumped and ordered another ESR and CRP to be done yesterday, and I have been told if they come back as elevated as they have been that they will consider exploratory surgery, which I really would like to avoid. If any one has any ideas of what this may be, that would be greatly appreciated, or even an idea of what they may be able to see by cutting me open, that they haven't already been able to see? Any idea/input is greatly appreciated.
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2104191 tn?1336247360
hi i am a 30 year old female i swear you just named all my problems and test results...i am getting ready to have an ERCP with BMP test..GI doc and family doc still don't know whats going on and i have been tested for 2 years..appendix and gallbladder remove in the last year..keep faith in gods plan, there has to be an answer...please keep us updated....GOD bless you!
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554409 tn?1218403468
I haven't been checked for C-diff, I will have to ask about that one too, thanks :).
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Avatar universal
were you ever checked for c-diff?
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554409 tn?1218403468
I just wanted to post an update. My Celiac test came back Negative, and of coarse my ESR came back elevated as well as my white cell count. I have requested access to my medical records. I will be having an upper endoscopy with Biopsies done next Tuesday, so I am keeping my fingers crossed that something will be found so I can have some answers. It seems a bit weird that the Dr would want to take a look at my stomach  if I am having abdominal pain, but it is better than surgery, and he is the one who is a doctor so I wont argue.
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554409 tn?1218403468
Thank you for the reply. The only thing I have a copy of right now is the pictures they took during the colonoscopy, but I am going to request a copy of the biopsy results. With the blood they took on Monday they are checking for Celiac, but the Dr sounded like he thought that it was unlikely because of the area in which I am experiencing my pain. I will have to ask about the Serology 7, I know they haven't run that yet, so I will have to see if they can do it. As far as a family history, my mother had stomach ulcers, and my grandpa has reflux issues. My aunt has allergies to oat products, so everyone has upper GI issues. I am hoping I will have the results of the Celiac and ESR CRP tests today, thanks for the input. I will definately be asking for the results to my colonoscopy and about the serology 7 test.
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Avatar universal
Korin, do you have a copy of the biopsy results from the colonoscopy and the colonoscopy report and can you give us the results of what they say? I know that sounds like a strange request, but sometimes small things are overlooked. The other thing is, have you been checked for celiac disease? Besides the colonoscopy, did they run a test like the Serology 7 to check for forms of antibodies that are put out with Crohn's or UC? Sometimes someone might show blood results even when nothing is seen in a colonosocopy or capsule endoscopy?

Anyone in your family with ANY form of GI issue or food intolerance issue?
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