I am 61 and have been extremely healthy until about 5 years ago.
I have been diagnosed with
InterstitialInterstitial cystitis (ic)
Interstitial cystitis - resources
Interstitial nephritis Cystitis and though they have me on many medications my pain has worsened. I've found that some of my worst pain happens when I need to have a bowel movement. I have to really push and then my movement is a few hard balls. I usually feel better after this for a
littleLittle noses decongestant
Little tummys while. I hurt from just below my navel down and inside. Sometimes I have
spasmCoronary artery spasm
Croup
Eyelid twitch
Facial tics
Hand or foot spasms
Urge incontinence
Vascular spasm like pains that
doubleDouble-tussin dm me over. I take about 5
aspirinAspirin
Aspirin adult low strength
Aspirin child chewable
Aspirin children's cherry
Aspirin children's orange
Aspirin ec lo-dose
Aspirin enteric coated
Aspirin lite coat
Aspirin litecoat
Aspirin low dose
Aspirin low strength and lay down till they take effect. But even laying down causes pain. I wake up as many as 10 times a night to urinate. Sometimes I'll releve myself and go back to bed to have to get up again in about 5 to 10 minutes. It's not a matter of waiting it out. The pain just keeps getting worse till you get up. Oddly when I'm up I don't usually have this problem. I have been cystoscoped
twiceTwice-a-day and my bladder has shrunk and is red and inflamed. I take Elmiron (to coat inside of bladder) Effexor XR (to help with pain) Neurontin (pain) Urised (bladder spasms) Ditropan (urgency) Hydroxine (help me sleep). All any of these do is make me stay sleepy all the time. I have had a hysterctomy and then a year later had a rectocele and cytocele repair surgery. All this has happened within the last five years.
Do you think this pain I feel and constipation is coming from the damage to my pelvic muscles ,my medications or is it something I should ask a different doctor about?
I can't plan a trip because it hurts to hit bumps or go for long rides. I have to sit down real easy and sometimes over on the side of one hip. Sometimes I have to stand. I've gained weight because I can't pick up any weight without it hurting in my pelvic area, up inside. The same goes for bending down to pick something up, it feels like everythings going to fall out.
I know this is long but I'm at the end of my rope. I have a Son, two Grandchildren and my Mother living with me and if I didn't have a loving husband who is trying to do his work and mine I couldn't make it.
Any suggestions welcomed,