I am a white female who was diagnoised in 2000, at the age of 44 with Autosomal Dominant Polycystic Liver & Kidney Diseases. I had liver surgery in early 2001 at a hospital in Detroit to unroof about 7 of the cyst so that they would drain. The largest one was approx 6 inch in diameter and contained almost 2 liters of fluid. The doctors said it was the largest one they have ever seen. I have about 50 smaller ones that are still in there and have to be monitored by regular MRIs to make sure they don't grow too huge. I have Polycystic Kidney Disease also. At the present time only 3 smaller cyst there. I was in the hospital for 5 days following my 8 1/2 hour liver surgery. I was in extreme pain for 5 weeks after the surgery and don't think I would ever have anything like that done again. I also had a large abdominal hernia that was directly related to the Polycystic Diseases I have. I have 2 daughters and I'm worried that they have the diseases too, being as the likelyhood to be passed from parent to child is 50%.
Has anyone else had this type of surgery for this disease? Also, are there any treatments for these diseases?
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