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Possible IBD? What are your thoughts?

by TexasEngineer, May 19, 2009 11:25AM
Tags: ibd
I recently had a colonoscopy (mid March) after noticing more mucus in my stool and a change of BM's. At times there was a little blood but not much. More mucus if anything. I was told I had Pan Colitis in addition to fatty liver. I had to change my diet and was put on Balzalizide (9 pills per day) and told to come back in June. I immediately eliminated fats, fried foods, alcohol, etc and saw a difference in BM quanity however the Balzalizide after two weeks wasn't showing much improvement. My original GI was not a good communicator so I approached my company doctor who is a walking and talking "Mayo" clinic. (I believe he may even be married to a GI as well. Not sure though.) He requested the pathology report and low and behold this is what it said:

Terminal ilieum: Lymphoid Hyperplasia
Rest of the colon: Moderate Acute and Chronic Inflammation (see comment)

Comment:
"The series of colonic biopsies demonstrate moderate acute and chronic inflammation including cryptitis. The pattern is not specific for a particular diagnosis. While the differential diaganosis includes early IBD, the absence of gland architechture distortion is unusual in IBD, and other etiologies including infectious causes should be considered in correlation to the patients clinical history and endoscopic findings."

The microscopic description further suppored the comments section with no ulcerations being found, etc. From my own research it sounds like I don't have enough evidence to peg the correct diagnosis however the original GI pegged me out as possible UC due to the whole colon being involved vs. a portion. The company doc however things that infection is to blame. I did eat a bad oyster about 2 weeks prior that my wife was witnessed too. His theory is that possible bad e-coli or vibrio overtook my system. From there, I did a a week of Amoxocylan-Clavo + Flagyl + Probiotics. Toward the end of the treatment my stool started to harden but once off, a slight degradation was had but not too bad. Following that treatment I did 10 days of Cipro and once off treatment, an overall improvement to quality of stool was had. I am eating much healthier now and am off all meds with only 1 to 2 BM's per day for the past week. They are relatively firm but at times occasionally softer (I eat yogurt everyday now with probiitics) with no visibile mucus or blood with the exception of a small trace amount on the wipe which i believe is normal. Below are my questions:

1) I am slowly reintroducing foods into my diet and I am not seeing a major degradation, etc in BM's In theory am I cured or am I in remission?
2) I plan on getting a 2nd colonoscopy early next year. If they find just a little inflammation does that mean I have the chronic form and if I am living life normally without meds, is it imperative to be on meds?
3) Colon cancer risk / frequency of Scopes....The original GI told me that I would need a scope run every year starting 10 years after diagnosis however my friend with UC gets it every 2 years following his 10th year. I am a general medical phobic so for some a colonoscopy is no biggie but more me it causes much stress and anxiety. I keep reading online that in the case of pancolitis...scopes are needs 10 years after "active" disease. What if you have 10 years of "inactive" disease? I guess is there a gray area in this...What if your a person that has such a mild case (lets assume I have IBD for now..I may not?) that you can control with diet. Are meds and their side effects necessary? if you can create remission with proper diet, etc. My anxiety level was so high prior to the scope fun could I  have inflammed my whole colon from worrying to much?

4) I am overanalyzing my BM's now and my company doc has instructed me to relax and not worry about them (i.e. quit looking in the toilet...don't stress. When I take his route, I feel fine. He feels that when I go for scope #2 that the GI will tell me everything is good for peace of mind. My buddy's GI says that if its really UC, I would see another episode of lots of mucus, etc within 6 months. Right now I am afraid to alter my diet as I fear what may happen but I am gradually altering it. Its there a rhyme or reason to bringing back boods into a diet. In theory your immune system causes an episode and the foods can agitate it. So should I bombard my system to see how it reacts? On the flipside my GI tract has not seen a hamburger in months with onions, etc so adverse effects are almost guaranteed
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