I am a 38-year old
femaleCondoms
Female condoms
Female sexual dysfunction.I began having the pain I will describe at the beginning of March.The pain has remained the same, in the same places and is very constant.It is under my right
ribRib cage pain cage(right upper quadrant)very deep,radiates around my right side into my right
shoulder shoulders intensive treatment
Shoulder arthroscopy
Shoulder pain blade and in between my
shoulder shoulders intensive treatment
Shoulder arthroscopy
Shoulder pain blades.The pain up under my last right
ribRib cage pain bone feels like someone has a clothes pin on it (a pinching sensation) and is squeezing the blood out of it,which then feels the same in my right
shoulder shoulders intensive treatment
Shoulder arthroscopy
Shoulder pain and blades and is a constant ache.
I have seen my Internist 3x since it began.Have since had several blood tests run (CBC, Chem-24, Liver enzymes,etc.);Abdominal and vaginal sonogram;Abdominal CT without contrast because they could not get the IV in;Abdominal MRI with contrast;HIDA scan with CCK;Upper endoscopy;Abdominal X-ray.The only thing that came up was that I had a cyst on my right kidney that is very small.I have seen my Gastro and then the General surgeon on request of my Internist and Gastro,they decided to do an Exploratory Lap with the possibility of removing my Gallbladder.
he Dr.'s have thought it still might be my Gallbladder even though the tests did not show it.I had the surgery 12 days ago. After surgery,the Dr. said she found my duct at an acute angle and that could have been the problem.
I returned this past Tuesday and my pathology reported the gallbladder to be "blue-gray to green and wrinkled;mucosal surface is pink-tan,bile stained;cystic duct is pin point and measures .1 cm with average mural thickness is .2 cm;a lymph node is not grossy identified and no stones are seen. Pathological Diagnoses:Gallbladder,Cholecystectomy: Chronic Cholecystitis.
Here I sit 12 days after surgery with the exact same pain I have had for 4 months to the point of crying most of the time because the pain never stops; its waxes and wanes as far as the intensity but never goes away. I am getting severly depressed with the continuous pain especially after having surgery and the pain still remains. I actually thought it might have stopped 4-5 days after surgery but it has come back in full force. I have a 3 1/2 year old and cannot hardly take care of him because of the continuous pain. I take Darvocet but it does not take the pain away. My Surgeon does not have a good bed side manner. She did not explain anything of what she did and does not give me the opportunity to explain my problems.
So my questions are: 1)Am I expecting too much too early - Should the pain I had before the surgery (if it was due to my gallbladder be gone)? I have had a C-section and sinus surgery and this does not feel like post-surgical pain because it is the same pain I had before and because it is still radiating.
2)I am very scared of cancer, could they have missed something??
Could I still have a problem with my pancreas,Sphincter of Oddi, common bile duct or a tumor somewhere that could be causing nerve pain?
Please help.I am very desperate and depresse
Thanks
This article "PostCholesystectomy Syndrome" is located www.emedicine.com/med/topic2740.htm It is a broad umbrella under which a host of possible disorders are listed with links for you to follow. That is where I started to investigate. I am 25 days post -op. Since narrowing down the scope of possibles w/support from new docs I've had good results treating symptoms while a proper diagnosis is being pursued. I still don't feel well, but I do feel better than I did. Patient education is critical. You have the time (doctors frequently don't - and can't always "spoon feed" us all the information we need -- plus motivation (pain relief provides strong incentives) and you above all others know yourself best. Pass any suspicions on to your doctor for professional assesments. If your doctor won't work with you -- get a new one. I won't work with a doctor that refuses to involve me in my own health care.
Following some research on the web I found strong indications - symptoms matched - and when applied to my medical history both past and present - it matched too. Following my lead - my Docs have narrowed down the most probable cause is located with the endocrine system (you'd be amazed at how intermingled all the body's systems are with the endocrine system) -- my matches - specifically for me - adrenal insufficienty and/or Addison's Disease secondary to a lesion left over from a previous pituitary tumor or a reocurrence of that tumor.
Links and research applied to your personal medical history - past and present might lead you in a different direction. Think very hard about what changes have happened in your life before you got ill. My thinking revealed that I became ill 2 weeks after very succesful back surgery. Epidural steroid injections, oral and IV steroids abruptly stopped because the surgery stopped the pain and the inflamation (inflammation) that the steroids had been controlling.
The unknown is generally frightening and poorly tolerated. I hope you are feeling better soon.
Thanks Kim
I just want to say that I also had my gall bladder removed.
I had an attack one month before my baby was born and several
after she was born. It was removed shortly after that. It was
about 8 months ago. The surgery went great and I was cleaning my house the next day! That was the end of the good news. I have
been going through HELL ever since. I'm taking pain almost
as bad as the attacks themselves! To make it worse, I have what they call "dumping syndrome" really bad.
I still call the pain "attacks" when explaining it to people.
I just want to let everyone know to try what works for me.
I force myself to cough really hard. It works! I feel a "pop"
in the spot where my gall bladder was and then the pain subsides
from there on. It doesn't stop me from having future attacks,
but now my husband says "cough it out honey, you can do it"
He's so great about it.
I just have a question that NOBODY has mentioned.
I only have one baby and I'm 33 and I would like to have another.
Has anyone gone through an entire pregnancy without a gall bladder while being able to deal with the dumping and cramping and after surgery attacks? Can I do it? I'm scared. Thanks.
pregnant without a gall bladder, but I do have a comment for
julesnj.
Yes, it does get better! Mine still hurts sometimes, but if this you gives you any hope at all, I'll tell ya that right after my gall bladder was removed, it was MUCH worse.
The pain will subside. TRUST ME.
Good luck.
As far as your question, I wish I knew so I could provide some answers for you. I would think the pregnancy might be enough of a distraction that things would go okay for you. I mean, I am 29 and fully intend on having another baby at some point, gallbladder or not. Good luck! Thanks again for replying to me!
Julie
I have had ultrasounds, cat scans., mri's, blood tests, and finally a colonoscopy last month. He could only go 1/3 of the way in cause I had so much scar tissue in my intestines. He says I will have to come back in and be put asleep for another one, soon. What is that all about? I had the lapriscopic surgey. Scarring in the intestines?
As for the pain, I have been put on everything from little anti spasms that I place under my tongue to Valuim, anti nauseas to antibiotics. Belladonna to antiacids. Nothing works...
I hate the fact of not know what causes it, how to prevent it, how to stop it, just how to live with it.
Thanks
I cannot understand why Astro continues to peddle this nonsense. Perhaps she works for Hulda Clarke.
Kimberly/Jacksonville Florida
Boy this gallbladder stuff is the worst. I had mine out may 2005 and have had pain and a bout of pancreatitis since. Had an MRCP,it was 'normal' saw a specialist in Boston and I`m having an endoscopic ultrasound on friday. THe doc thinks this is what my problem is... check this out and if you cant get to the link from here, http://www.indiana.edu/%7Eengs/hints/oddi.html
just type in 'Sphincter of Oddi or bile duct spasms' into your search engine. The pain I`ve had is the exact as before I had my gallbladder removed, actually its worse. The docs treated me like I was crazy till my pancreatic enzymes shyrocketed. Personally I think all docs should have to experience undiagnosed illness for a few months before the get their MD.
Anyway, if you have the same kind of pain and your doc is shrugging his shoulders (they take a class in that I think!) check this out... it makes sense to me!
Hope EVERYONE fares well!
Lexxi
Hope this helps!
Z