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Proctitis/Ulcerative Proctitis
by alwayshopeful13, Feb 28, 2008 04:46PM
SYMPTOMS FOR LAST 3 MONTHS:
I have heavy pressure in the rectum (from light to very bad), achiness in inner thighs, sciatic type of pain down left thigh/leg, occassional pinching in anus (especially after bowel movement), strange feeling in vagina (maybe from rectal pressure), some air bubble builds up in the labia and then pops when I shift positions. All these symptoms are constant but go from light to very bad day by day, morniong to night.
HISTORY:
This all started suddenly after a vaginal hysterectomy. I was doing fine at 5 weeks post op and then at 9 weeks, I passed a hard stool (only that one time-been ok before and after).
After a week of that vaginal feeling, achiness in the inner thighs, sciatic type pain on left, I went to the ER. They gave me antibiotics for a suspect vaginal infection. The antibiotics gave me bad diarrhea and more pain. Followed up with my gyno who said I did not have infection or prolapses and to stop the antibiotics.
Pain/pressure continued and I had another vaginal exam and ultrasound to rule out ovarian cysts or other problems. After a month I was referred to a GI doc who said I had a fissure. It healed after 6 weeks of Cardizem gel and sitz baths. But pressure/all above symptoms still bad. I had a CT scan-normal findings.
I then had a colonoscopy and told I had ulcerative proctitis and given 5-ASA Canasa suppositories for two weeks now.
All my sympotms are exactly the same since day 1 (9 weeks after hysterectomy) and for 3 months since.
I never had ANY of these symptoms before in my life and now I have been diagnosed with an incurable condition that I cannot manage. It cannot be a coincidence that I developed ulcerative proctitis after surgery, I was told it was hereditary/stress/unknown cause. (No relatives admit having it). The GI dr. said it was very mild and very hard to detect,,,,but I am not convinced it is 'ulcerative'. I NEVER had BM problems or blood in stool.
I feel the 'inflammation' in the rectal perineum area. But my symptoms and timing are not a textbook case.
I am suspecting something is anatomically bothering my rectum and this caused a chain reaction of symptoms. Perhaps scar tissue tethering my vaginal cuff to rectum? Overtight stitches at the cuff/uterosacral ligaments? These were suggested over the phone by a friend of mine who is a doctor.
Should I see a colorectal or urogyno dr. or both for another opinion? Would I need a laparoscopy to determine other causes?
Thanks for your help.
For those who have chronic rectal pain/issues, you do undertand what I'm going through!
This discussion is related to Rectal Pain and Pressure.
I have heavy pressure in the rectum (from light to very bad), achiness in inner thighs, sciatic type of pain down left thigh/leg, occassional pinching in anus (especially after bowel movement), strange feeling in vagina (maybe from rectal pressure), some air bubble builds up in the labia and then pops when I shift positions. All these symptoms are constant but go from light to very bad day by day, morniong to night.
HISTORY:
This all started suddenly after a vaginal hysterectomy. I was doing fine at 5 weeks post op and then at 9 weeks, I passed a hard stool (only that one time-been ok before and after).
After a week of that vaginal feeling, achiness in the inner thighs, sciatic type pain on left, I went to the ER. They gave me antibiotics for a suspect vaginal infection. The antibiotics gave me bad diarrhea and more pain. Followed up with my gyno who said I did not have infection or prolapses and to stop the antibiotics.
Pain/pressure continued and I had another vaginal exam and ultrasound to rule out ovarian cysts or other problems. After a month I was referred to a GI doc who said I had a fissure. It healed after 6 weeks of Cardizem gel and sitz baths. But pressure/all above symptoms still bad. I had a CT scan-normal findings.
I then had a colonoscopy and told I had ulcerative proctitis and given 5-ASA Canasa suppositories for two weeks now.
All my sympotms are exactly the same since day 1 (9 weeks after hysterectomy) and for 3 months since.
I never had ANY of these symptoms before in my life and now I have been diagnosed with an incurable condition that I cannot manage. It cannot be a coincidence that I developed ulcerative proctitis after surgery, I was told it was hereditary/stress/unknown cause. (No relatives admit having it). The GI dr. said it was very mild and very hard to detect,,,,but I am not convinced it is 'ulcerative'. I NEVER had BM problems or blood in stool.
I feel the 'inflammation' in the rectal perineum area. But my symptoms and timing are not a textbook case.
I am suspecting something is anatomically bothering my rectum and this caused a chain reaction of symptoms. Perhaps scar tissue tethering my vaginal cuff to rectum? Overtight stitches at the cuff/uterosacral ligaments? These were suggested over the phone by a friend of mine who is a doctor.
Should I see a colorectal or urogyno dr. or both for another opinion? Would I need a laparoscopy to determine other causes?
Thanks for your help.
For those who have chronic rectal pain/issues, you do undertand what I'm going through!
This discussion is related to Rectal Pain and Pressure.
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Proctologist - I'd say. Sigmoidoscopy will probably be needed again.
Laparoscopy would be neded, if nothing special would be find within the rectum, so if adhesions or endometriosis would be suspected.