My son was diagnosed with Goldenhar Syndrome & GERD & put on medication (
ZantacZantac
Zantac 150
Zantac 300
Zantac 300 geldose
Zantac 75
Zantac efferdose
Zantac geldose &
Reglan) at birth. The
refluxGastroesophageal reflux disease
Gastroesophageal reflux in infants
Hiatal hernia repair
Reflux nephropathy
Vesicoureteral reflux was silent till 3 months when the vomiting began one day after his
cleftCleft lip and palate
Cleft palate - resources lipChalazion
Cleft lip and palate
Cleft lip repair - series
Clubfoot
Coronary risk profile
Hdl test
Herniated nucleus pulposus
High blood cholesterol and triglycerides
Ldl test
Lipase test
Lipocytes (fat cells) surgery. At 6 months an endoscopy showed no
esophagitisEsophagitis
Herpes esophagitis
Herpetic esophagitis & pH study showed mild reflux. Medication doses were increased with no improvement so feedings were changed from bolus to continuous with no improvement.
At 11 months he was admitted to the hospital for severe dehydration. pH study showed moderate reflux. Abdominal ultrasound was normal. Gastric emptying study was normal. We were referred to a surgeon for a Nissen.
Then the vomiting suddenly stopped. The ONLY change made at this time was an increase in trach size from Shiley 3.0 neonatal to 3.0 pediatric. Unfortunately, this improvement only lasted 2 weeks.
At 16 months a Nissen was done. For 3 months post-op the vomiting stopped. Then the vomiting slowly returned. An upper GI was done & the Nissen was still intact.
At 20 months a Jtube was placed. He continued to vomit stomach acid even with the Jtube. At 22 months the Jtube clogged another could not be placed.
Another pH study at 23 months showed no reflux, just spikes in acidity when he vomited.
He is currently 22 lbs 4 oz, 35" & 25 m old. He vomits anywhere from 5 to 20 times daily. He receives continuous feeds of Pediasure Entrail formula for a total of 1200 calories per day. All blood work is normal. All neurological scans are normal.
Has anyone else experienced anything like this? Does anyone have a suggestion on what to try next?
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