Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Questionable Carcinoid Diagnosis
by cabrero, Jun 13, 2009 09:30PM
Was wondering if anyone can interpret my situation regarding a carcinoid diagnosis. Have had bouts of facial flushing for the past 3 years or so ( I am 26) mostly stress, heat, sleep, sun, related but can be quite intense, have had chronic belching for about the same time, varying in severity from once a second to once every few minutes, or hardly at all, can be explosive or just a low rumble. Diarrhea started about 1 year ago and has gotten worse, mostly just loose, sometimes watery, but can happen up to 8 times a day and a minimum of three, seems to accompany the belching. Night sweats occasionally. Otherwise in good shape and have plenty of energy just flushed sometimes and have loose bowels.
I had 2 24 hour urine tests done for 5hiaa, the first came back as 15.8 with 6 being normal. They hadn't told me to avoid certain foods, but I don't think I ate anything on the list anyway. The second came back as 8.4. I had a CgA blood test done which came back as 190 with below 225 being normal. I then had an octreotide scan done, they found questionable liver uptake. Two foci of slightly brighter than the background questionable increased activity within sections 5 and 6 of the liver. Otherwise normal. They suggested a CT scan since it was questionable. The CT scan came back normal.
So where should I go from here? Are there any other possibilities that might explain my symptoms. How likely would it be to be carcinoid syndrome still? I would accept rosacea accept that 2 dermatologists said it was not rosacea And what about going to the bathroom so many times a day, and why so much belching? There has to be something wrong with my GI tract. I have been tested for celiacs, h pylori, parasites, anti periatal cells, hiatal hernia (upper gi), and have tried avoiding almost every food. Crohn's or Ulcerative Colitis don't seem to fit my symptoms but what do I know. Any advice would be very helpful. Thanks.
Joseph
I had 2 24 hour urine tests done for 5hiaa, the first came back as 15.8 with 6 being normal. They hadn't told me to avoid certain foods, but I don't think I ate anything on the list anyway. The second came back as 8.4. I had a CgA blood test done which came back as 190 with below 225 being normal. I then had an octreotide scan done, they found questionable liver uptake. Two foci of slightly brighter than the background questionable increased activity within sections 5 and 6 of the liver. Otherwise normal. They suggested a CT scan since it was questionable. The CT scan came back normal.
So where should I go from here? Are there any other possibilities that might explain my symptoms. How likely would it be to be carcinoid syndrome still? I would accept rosacea accept that 2 dermatologists said it was not rosacea And what about going to the bathroom so many times a day, and why so much belching? There has to be something wrong with my GI tract. I have been tested for celiacs, h pylori, parasites, anti periatal cells, hiatal hernia (upper gi), and have tried avoiding almost every food. Crohn's or Ulcerative Colitis don't seem to fit my symptoms but what do I know. Any advice would be very helpful. Thanks.
Joseph
Member Comments (1)
by cabrero, Jun 13, 2009 09:41PM
To: cabrero
Forgot to mention, I had two thyroid tests come back normal, and have low blood pressure so no pheocytoma.
Post Comment
Related Communities
Recent Videos
Related Expert Forums
Recent Activity
Most Popular Trackers
RSS
Expert Activity
Community Members
