I am hoping you can give me your suggestion for the next steps and/or tests to do for this. I have not yet seen a gastroenterologist for this as they are difficult to get into. I have only seen my
primaryPrimary amyloidosis
Primary biliary cirrhosis
Primary hyperparathyroidism
Primary insomnia
Primary lymphoma of the brain (GP).
In Nov of 2006 I began to have a type of stomach
pressurePressure ulcer in my upper right area of my stomach. It felt somewhat like a ball in my side. I could not feel it physically, it was just inside. After a few weeks it began (same
spotBirthmarks - pigmented
Liver spots
Measles, koplik spots - close-up
Mongolian blue spots (under my upper right
ribsRib cage pain) to
burnAirway burn
Burn, blister - close-up
Burn, thermal - close-up
Burns
Burns - resources
Eye burning - itching and discharge
First degree burn
Heartburn
Heartburn prevention
Minor burn - first aid - series
Painful swallowing or become a gnawing pain. Sometimes pretty bad. It was never
isolatedIsolated sleep paralysis to only night time.(as in reflux) It actually was throughout the day, sitting, standing or whenever. Some days are worse than others. There seems to be no pattern. I still have it in the same spot and also now in my upper should blades right side. My GP put me on priolosec OTC 2x day. I have been on this for 3 months. Absolutely no change.
Tests done: Ultrasound of my liver, gallbladder and stomach area. Everything came back okay. No other tests done.
I am not sure what to do next as I do not want to have unneccesary tests done. It seems to me there must be a reason for this. I am having a hard time getting into a gastroenteroligist. My GP does not seem very concerned about it. I am though, because it has gone on for so long, NEVER changing the AREA of where it hurts . It also radiates (burns) in my shoulder blades (right side as well)
Any suggestions or steps to take would be greatly appreciated...
I was in 5 different teaching hospitals in London, England, until I was finally an in-patient for 3 weeks whilst complex tests were done. There were no colonoscopies or endoscopy tests then, either in the UK or USA.
One night duing that period in hospital, I woke with a weird pain on my right side, just below my ribs, felt like a "stitch" you get after vigorous physical exercise, yet I was bed bound - told the night nurse, and next morning all hell broke loose.It was an Eureka moment for my doctors. I had blood transfusions, and IV's. Two days later I had a laparotomy and some 15 different ulcers and crypt abscesses were found in my small bowel, particularly around the terminal ileum. Docs said they could not resect so many lesions and I was put on some 60 mg per day, of steroids, which would be quite unacceptable today.
Today, one doesn't have to go through a laparotomy, as a colonoscopy and/or endoscopy can diagnose inflammatory bowel disease, either Crohn's or Ulcerative Colitis.
I would strongly suggest you see a Gastroenterologist as soon as you can - they are the appropriate medics to sort your problem out. The doctor on here can't, as you haven't had appropriate testing yet and he doesn't have access to your medical records.
There is a new test for IBD - it is called Calprotectin Assay - I have it occasionally now - you just have to provide a faecal sample, and if IBD is present, it will show on this test. It is simple and inexpensive.
I do hope you get some answers - but you must be proactive, as IBD presents in many different forms. I am doing well, some 37 years later, on a weekly self injected immuno-suppressant, methotrexate. So, even with a bad diagnosis, there is decidedly light at the end of the tunnel. I also have breast cancer, but that is not so difficult to either detect, or treat, as IBD.
Take care.
Liz.
Anyway, I can't even get into a gastro until july...I am wondering if I should go to the urgent care or ER so they can ateast do a CT Scan or begin soemthing. The pressure in the right side (under ribs...right below) is always there, but it is when it start burning that it really bothers me. I wonder if at that time I should go to the urgent care or ER just to begin the process. I am SO frustrated...And I KNWO something is going on for it to be at the same spot since then...