SLE, pancreatitis, Sjogren's Syndrome , Chron's Disease, Hashimoto's Thyroiditis, vasculitis of the breast

[lostmylifeat33]

HELP!!!!!!!!! Over the last 17 years I have been - (and all are confirmed except the pancreatitis) with all of the chronic and incurable diseases listed in the title. I also have an extremely bad (painful) back and was even confined to a wheel chair for a few weeks until I received successful epidural blocks.

Now, I am being treated for Pancreatitis which I first heard of 3 weeks ago when I finally went to the GI doc (again). BTW - I am a GI docs dream constant cash flow. I have been so sick I could not get the scan or bloodwork he ordered until my 12 year old called 911 and I was taken to the ER.

Since then, I have been on two different antibiotics (for the last week). I discontinued Imuran bc I thought that would help me recover. However, I am not any better. Nausea, pain, low fevers and disgust are constant. I vomit but since I cannot eat well it is mostly acid. I am extremely depressed.

I finally talked to the nurse at the GI docs office today and she has not seen the ER records and did not know anything about me although I called last week as instructed. This is typical in this area. I think I see one of the better GI's.

Is there anyone like me? What should be done? Is this my Rheumatologist's area or the GI doc? They will not work together here. The Chron's Disease showed me that. My Rheumy has already told me that I am too ill for her to treat but I live in Naples, FL and the other two Rheumy's in this county have no respect. I have seen one and forget it!  I was diagnosed with Lupus by Dr. Michelle Petri at John Hopkins  in Baltimore when my heart and lungs were first attacked. I have been trying to get an appointment to see her again but in the last 6 months have been unable to get anywhere as I have not been there for awhile. But - I was in her study, that should count for something. The problem is that you have to be your own doctor or there is no care available. It used to be better off season but not anymore. The tourists are gone so the Doc's cut their hours. Thank God for the net as at least I was able to get some basic info., but not relief.

Please help me. Bless you.







This discussion is related to Pancreatitis, lupus and renal tubular acidosis.

[wisern]

Pancreatitis would be best treated by a gastroenterologist. You should still see a rheumatologist for the inflammatory processes related to lupus. I am sure that you are well aware of the toll that lupus takes on your body and your life. It is common to see pancreatic and liver involvement with Lupus. Since pancreatitis is such a serious problem, I think that you need someone who specializes in pancreatic disease.