Severe chronic pain, inflammation HELP PLEASE

[dixie27]

My son has been experiencing severe and chronic stomach pain since April 2007.    The first bout put him in the hospital and was diagnosed as pancreatitis.  Subsequent trips to ER and hospital admissions have failed to result in comprehensive diagnosis.  Endoscopic exams showed severe inflammation in duodenum, proton pump inhibitors prescribed...no help.  He continues to suffer.  He has seen three GI docs and they all give up on him.  He cannot work and is severely depressed because of this illness.  Please help.  Is there a clinic or doc in Georgia or N. Florida or S. Carolina where he has a chance of getting help?  As an infant, he had surgery to correct pyloric stenosis. I read that infantile pyloric stenosis is genetic and that it is linked to hyperacidity.  Something about the body's inability to properly utilize nitric oxide...  I am desperate.


This discussion is related to HELP--Ulcer, Pyloric Stenosis, Weight Loss..

[CalGal]

I can't suggest any docs, but has he been evaluated for gallbladder issues? Spasms of the common bile duct or the opening to the duodenum (sphincter of Oddi) can cause a backup of bile and pancreatic juices and that can result in pancreatitis. Has he been rechecked for on-going problems with pancreatitis and have the monitored his liver enzymes and pancreatic enzymes?

When they did the scopes, what did the reports say about what the biopsies of the duodenum showed? Inflammatory patterns can result from more sources than just acidity from the stomach. Is there any history of celiac in your family?

If you haven't read the biopsy reports yourself, get them and do so. There could be some 'clues' hidden in there. Docs often pass off an inflammed duodenum as being due to acid alone. You need to make sure there isn't another reason, which means reading those reports.