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Avatar universal

Somebody Help my Son! Where's "House" when you need him!

To start out, you cannot imagine what my son has been through.  1st off...he weighed 275 lbs (3) months ago.  Now at 220 lbs, because he's in to much pain to eat.  Has had intense, excruiating pain in lower right quadrant area for the past 3 months.  Has had 17 visits to the ER and been admitted 5 times due to the amount of pain he is in.  Has had 4 CT scans,(3) MRI's,  Colonoscopy, Xrays, CBC's (unbelivable amount of times) and put on a glutin free diet.  The pain doesn't stop.  They have ruled out Krones disease and irratiable bowel syndrome.  

I got mad and took him to Virginia Mason in Seattle to see if they could help.  They looked over his chart, did another CT scan and said they only found one lymph node that was not normal.  They want to biopsy it, but the ER docs in Vancouver state that it is not big enough to biopsy.  He doesn't have any elevated white count, which constitutes no infection, thus no problem.  They gave him a shrink in the hospital and he stated that he is perfectly fine.  They hospitalize him then release him (as he has no insurance at this time because he cannot hold a job, due to the pain) and send him home with massive pain relief. They treat him with Morphine & Deladin in the hospital.  Now if there is NOTHING supposedly wrong with him, then why are you treating him with this kind of medication????  They have no answer to this.  

NORMAL KIDS DON"T LOSE THIS MUCH WEIGHT IN 3 MONTHS!  Normal kids can eat!  He loves to eat, thus his high weight 3 months ago.

There is something wrong with him.  And as a mother, watching your son cry constantly and asking me to help him, it vertually killing me!  I am not made of money and the cannot get assistance cause I make 50K/year.  But after 100K in hospital bills, another 500 a month in prescrption's to pay for, and yet no diagnosis and no better off then we were before, I don't know what to do.

Please, please, please, someone help us!  Help him.  Just takes one person to have another idea.
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Avatar universal
You might consider a HIDA scan with CCK infraction.  It helped to diagnose my gallbladder problem after over a year going through a multitude of tests that all came back "normal."  I also changed doctors who were curious about my pain (center of abdomen), and the pain/nausea symptoms replicated during the exam.  It can also tell you if your gallbladder is under functioning or hyperactive.

Good luck and better health!
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Avatar universal
sounds like appendecitis to me.............. or maybe the bowel twisting and untwisting?
does he go to toilet normaly?
any other symptoms like back pain shoulder pain?
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Avatar universal
Just out of curiosity, have they by any chance done an IVP to check for kidney stones?  My father has had MANY kidney stones in the past and sometimes his ONLY symptom is abdominal pain.  Normally you would think pain from a kidney stone would be located in teh kidney area, but it does not have to be.

My father is now on daily medication that helps keep his body from producing so many kidney stones, but before that he would have them almost every other month!!

I would suggest trying a urologist - it certainly coudln't hurt.

Please keep us posted on how he's doing.  Best of luck!
Helpful - 0
483733 tn?1326798446
Gluten is not easy to remove from his diet.  I'm not questioning you here but I know I made mistakes when I did the gluten free diet.  It is in so many things in many different types of forms.  You need to search on all the names that gluten can have and be diligent in ensuring it is not in what he is eating.  Try putting him on a gluten free, dairy free, low fat, sugar free diet and keep it very bland.  Avoid high fiber vegetables and only eat cooked ones. Gluten free oats are good for him and will sooth the colon.  If he tries this for a couple of weeks to see if everything calms down.
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Avatar universal
For the nausea due to pain, you can talk to a doctor about a medicine called Zofran which is expensive but it is very helpful.  Because of the location, I would try harder to find a doctor to consider the appendix.
Helpful - 0
Avatar universal
They have stated that maybe taking his appendix out will help, but everyone continually says no after consultation as the is no evidence that there is anything wrong with them.  I have begged them to do exploratory surgery and they flat refuse.  Only say, they just can't explain it.  His pain doesn't travel.  It's in the lower right quadrant area.  Says he feels like he's being stabbed with a knife!
Helpful - 0
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