Hi,my name is Kelly.I am f/22 and have a 2 yr old son.I have been having what I call attacks on and off since he was born.And Im looking for opinons, because Im about at the end of my rope.Here is my background:
It started probably the day after I got home from the hospital, I had a c-section so I was in bed and I felt a sharp hunger type pain below my breast bone(where it is soft).I tried to get up and move around but it hurt to bad and no matter what I did I couldnt sit/stand/lie down to get comfortable, lying down seem to make it worse. Then I didnt have another attack for a few months.About 5 months later they started again, but alot worse.In July of '02 I went to the ER and they did an ultrasound and said I had
gallstonesAcute cholecystitis (gallstones)
Gallstones
Gallstones, cholangiogram
Kidney cyst with gallstones, ct scan.The next day my gallbladder was removed.I was really sick for a few days after the surgery,throwing up.A week later the pains started again,my doctor gave me some
nexiumNexium
Nexium i.v. and it seemed to make it worse.He ordered some kind of abdominal cat scan,and blood tests but EVERYTHING came back negative.
I really didnt have many problems for a good 6 months,besides diarrhea everyday within a 1/2 hour after eating. It has almost gone away a year after surgery. But the pains have been starting again. Sometimes 3 times a week sometimes 6 weeks in between attacks. Most of the time in the early after noon lasting from 3-5 hours. The only
comfortComfort pac with cyclobenzaprine
Comfort pac with naproxen
Comfort tears I can find is to stand in a hot shower with the water on my back.
It got really bad one day and I went to a different hospital ER and they did all kinds of blood work and
urineCalcium - urine
Calcium urine test
Chloride - urine
Cortisol - urine
Electrolytes - urine
Glucose test - urine
Hcg in urine
Ketones - urine
Kidney - blood and urine flow
Lh urine test (home test)
Ph urine test analysis, everything was
normalNormal saline flush,and they told me it probably wasnt pain I was feeling just discomfort.
The PAIN starts out (always) in the center, below my breastbone it grows in intensity to a very severe(no highs or lows) pain. Then it moves to my back, between my
shoulder shoulders intensive treatment
Shoulder arthroscopy
Shoulder pain blades...but down a bit. Sometimes I can feel it coming on because my back starts aching. I do not have a fever...but I do experience chills and sometimes sweating.
I went to another doctor and she put me on nexium and something for IBS,for the first 6 weeks I didnt have a problem, then 4 days in a row I did. I really dont know what to do from here. My father-in-law was looking stuff up for me on the net and came across a woman's problem similar to mine, so I decided to write also.
I am so tired of felling sick all the time, please help me! Thanx for your time.... Kelly
Shannan
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If aanyone can help me with this problem,maybe had similiar feelings themselves.please respond.Any comments are appreciated.
So there is my story , I hope I can help anyone who is looking for answers. It has taken me alot of searching and gathering my records so I had proof for the doc.s to see. Good Luck and do a search under "sphincter of oddi dysfunction". You might be able to relate.
I appreciate the comments! Ill let you know!
Kelly