Aa
A
A
Close
Avatar_universal
Total Colectomy- Life after surgery?
I am going for a surgical consult for a Total Colectomy soon. I have had colon transit problems since I can remember, but it has become more severe within the past 6 or so years. I am 30 now and have to take laxatives daily, along with almost weekly enemas. I tend to build resistance to the laxatives rather quickly so I end up having to switch them regularly and take way more than recommended.

I have a great doctor who has done thorough tests to ensure that my upper stomach is working properly, and that only my colon is the problem. So it looks as though surgery is a good option for me at this point. But I am very worried about both the short-term and long-term effects of the surgery.

Has anyone had a Total Colectomy? What was the recovery like? How often were you using the bathroom? Could you control it? Was there nausea and vomiting, etc? Did you lose weight?
And how has your life been longer after the surgery? How many times are you going to the bathroom now? Are you in pain?

Thanks so much for ANY advice you could give! It's a big, scary decision!

Cancel
5 Answers
Page 1 of 1
Avatar_universal

I underwent a total colectomy about seven years ago for torrential diverticular bleeding.  In response to another Medhelp patient's question, I posted my experience on:-

http://www.medhelp.org/posts/show/523166

It may be that your surgeon can perform this operation laparoscopically with less "trauma" - I think it depends on the "geometry" of the intestines etc.

Do come back if you have any questions.

regards
Morecambe
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal

PS to the above - you might like to print off my posting and show it to your surgeon and ask him/her "is this what you would expect ME to experience"?

Today - seven years on - no pain, #2 perhaps 2x per day and 0-1 x per night.  Put back all the weight that I lost after the surgery (80 kg before, 72kg after now back to 80 kg).

I would also ask your surgeon whether the operation is still possible (and does it carry greater risk of peritonitis?) if the pre-adminiistered purgative is not able to clear your lower intestine of all its impacted faecal matter.

regards
Morecambe
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
Thanks so much! That was very helpful!
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
1704915_tn?1357604854
Did you end up having the surgery? How did everything turn out? I am seeing my doctor on the 23rd to discuss this surgery and was looking for some feedback from people who had this surgery for constipation/colonic inertia.
Comment
Cancel
1704915_tn?1357604854
Comment
Comment
Submit Comment
Avatar_universal
I had a j pouch (with total colectomy) and had damge to my bladder and nerves in my perineal area.....I cannot work, am in constant pain and wish I had not done it...I, like you, had to take laxatives every day...after the initial diarrhea wears off (incontinence at night---total) you will be constipated again, I recommend against it...sorry
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Your Answer
Avatar_universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Total Colectomy- Life after surgery?
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Gastroenterology Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Digestive Answerers
Avatar_m_tn
Blank
fntn
MI
Avatar_n_tn
Blank
cnoevl21
317787_tn?1428318779
Blank
Dee1956
DC
1340994_tn?1374197577
Blank
Caryopteris
Raleigh, NC
Avatar_f_tn
Blank
NeedSomeHelp456
329165_tn?1443506417
Blank
Smiley2000
Australia