UNCONTROLLABLE BILE REFLUX!! PLEASE HELP!!

[JayFaith]

Hello.  I have recently been diagnosed with bile reflux.  I have SEVERE, CONSTANT burning in my stomach, abdomen, and chest area.  The bile is refluxing not only into my stomach but my esophagus.  It is so out of control that is has caused my esophagus to not open properly from the burning not being controlled.  And most of all it has caused tachycardia with my heart to the point that when the burning is at it's worst I get heartrates in the 180's.  It has been narrowed down that the bile reflux is causing my problems.  I have a constant fire raging in my stomach/chest/abdomen.  I was prescribed Questran and Welchol, both of which gave me severe heartburn and gas, which did not help because it just went from one type of burning to another.  The only thing that seems to even help a little is Carafate, but not that much.  The docs have told me that they don't know what other meds to try.  Can anyone who has had experience dealing with bile reflux please offer some suggestions as to how I can control this.  It has not been determined what the cause of the bile reflux is.  I have had many tests done (hida scan, mri with mrcp, blood work, egd) the only thing I haven't had done is a small bowel follow-thru, gastric emptying study, and a colonoscopy.  I am not sure what happened to my body.  Prior to having bile reflux I had acid reflux for over 20 years and after seeing a post that said "activia" yogurt cured my acid reflux I decided to try it and after the 14th day my body exploded with excess gas, rapid heartrate(198), and uncontrollable belching(up to 20 min at a time), and severe burning that has not let up for the past 2 1/2 months.  I don't want to leave this out because also during the 14 days that I ate activia I also went on a yeast/candida free diet and and sugar free diet and got 2 IV iron infusions for iron deficienty anemia.  Not sure if these things had anything to do with it but I was pretty much healthy before I embarked on this 14 day diet change.  Based on the testing apparently "activia" did cure my acid reflux because I no longer have acid reflux I now have alkaline/bile reflux.  I am currently typing this from the hospital.  During the last 2 1/2 months I have been hospitalized 8 times.  All docs are puzzled and can't seem to help me.  When I take any type of PPI, H2 blocker, or acid med even something as simple as tums or rolaids, the burning gets worse.  When I tell the docs that they don't believe me but I have found many articles and posts that say that when you have bile reflux these meds make it WORSE....how come the docs haven't read this info?  If anyone has any suggestions on how I can control this bile reflux thing please let me know.  I am very desperate and in misery.

Also, not sure why the bile reflux developed.  I did have abdominal surgery but that was to remove fibroids and they used the same scar as a previous c-section about 3 months prior to this happening.  I do have adhesions from the surgery but bowels flowing normally.  When I ate the "activia" yogurt I am lactose intolerant, I think, and could I have possibly caused an ulcer in my colon.  I read that ulcers there could cause bile reflux, but haven't had a colonoscopy yet.  

Right now I just really need a suggestion of what I can take to get out of this constant burning and pain and then I will continue my search for the cause.  

Please help if you can.

[Ladywithbilereflux]

I have been diagnosed with bile reflux.  I was prescribed cholestyramine, a bile sequestrant which has helped tremendously.  I take a regular dose every day, and also take it when I feel the burning in my stomach.  The burning goes away immediately after about 1 teaspoon.  I take the teaspoon in 1/4 teaspoon amounts slowly on my tongue, then slowly swallow bits with water - letting it linger.  I take 4 1/4 teaspoon amounts before each meal on an empty stomach.  It helps about 90% of the time.

[Slopokidog]

Look into the linx procedure. It helped me a lot! Until I accidentally had an mri. Now I have chest pain and nausea and side pain. I feel so sick right now, but I'm not actually ill. I am pretty sure it's the bile reflux again. I can taste bike and I was in er with chest pain, they did many tests, it isn't my heart. I had a follow up with my Dr. Repeated ekg and x Ray bc my side bc of pain. Have another follow up with her next week. She's almost positive it's the refux again. I had my gall bladder out in 2011. She wants another scope and so on...

[Ladywithbilereflux]

I have been diagnosed with bile reflux.  I was prescribed cholestyramine, a bile sequestrant which has helped tremendously.  I take a regular dose every day, and also take it when I feel the burning in my stomach.  The burning goes away immediately after about 1 teaspoon.  I take the teaspoon in 1/4 teaspoon amounts slowly on my tongue, then slowly swallow bits with water - letting it linger.  I take 4 1/4 teaspoon amounts before each meal on an empty stomach.  It helps about 90% of the time.

[dottie671]

I'd like to know too.  Just diagnosed via endoscopy yesterday

[SumitaSofat]

I am researching for my elderly mom.  I am learning that gerd and bile gerd are different.  I read sickboys cure for the bile gerd and I appreciate that.  Does gerd also cause thick salivia?  I am trying to rule out different things.  Thanks!

[viciousvic76]

What foods promote the production of bile, so i can stay away from it

[Mandirama]

- Ursodeoxycholic acid

More Info:
http://www.mayoclinic.org/diseases-conditions/bile-reflux/basics/treatment/con-20025548