I'm a 36 year old male who eats well, exercises regularly, and lives a reasonably healthy lifestyle. Four month ago I started having pangs of pain in my right upper quadrant, just under my ribcage. I couldn't indentify any obvious pattern (e.g. pain after eating a
fattyXanthoma meal), but I did notice I felt it often at night. Concerned, I saw my
primaryPrimary amyloidosis
Primary biliary cirrhosis
Primary hyperparathyroidism
Primary insomnia
Primary lymphoma of the brain care physician who suggested it might be a gall bladder problem. I had a blood test done for liver function, it came back
normalNormal saline flush. Next he referred me for an ultrasound. The ultrasound found nothing unusual so my physician prescribed
NexiumNexium
Nexium i.v. and said I was likely flirting with an ulcer or some persistant gastritis.
Three months passed and I continued to have periodic pain, slowly becoming more persistant. I checked in with my physician again and he set me up for an upper GI endoscopy. Fortunately, that came back negative as well. I'm certainly happy that nothing was found, but am left with worsening (almost ever-present now) symptoms and no answers. The pain is typically under the lower right side of my ribcage, but sometimes radiates higher in my chest. If I curl my
fingersAmputated finger
Amyloidosis on the fingers
Clubbed fingers
Cryoglobulinemia - of the fingers
Finger pain
Herpes zoster (shingles) on the hand and fingers
Janeway lesion on the finger
Kawasaki's disease, peeling of the fingertips
Nail abnormalities
Replantation of digits
Ringworm, tinea manuum on the finger under my
ribsRib cage pain it is usually quite tender, all the way down the length of my liver.
Two weeks ago my stools had an orange hue to them (I assume this is what is refered to as "clay colored"?). This lasted for about ten days, but my stool color seems to have returned to normal.
My question is what conditions could be causing this pain if it didn't show up on an ultrasound or an upper GI endoscopy? Since the ultrasound was performed very early on when I just started feeling the symptoms, is it possible that it could have missed something serious(i.e. small tumor that has since grown)? I don't think my primary physician intends to do any more tests, so am wondering if I should insist on any others or whether I should see a specialist? I'm trying not to be neurotic about it, but am growing increasingly concerned. Any thoughts or advice would be much appreciated. Thank you.
Just yesterday I had my worst attack of six years. I believe my stomach virus and the tylenol/immodium I took added to the problem. When I went to the ER (now I live in a different state) I explained to them what the attack was that I get this on and off for six years. I even showed them my appeal letter written by my gastroendocronologist so they just did not think I was some nut off the street. The doctor on in the ER did not seem familiar with this problem. I tried to explain that my doctor in the past would treat me with Levisin, an antispasmatic and it would help to relax the sphincter. He would not listen all he gave me was phergan (even though I explained that I only vomit when in SEVERE PAIN for a sustained amount of time) and IV Tordal for pain. Even though it helped me to relax enough to get some rest. It did not take care of the spasm. I feel my right side is tight and I am fearful of another attack.
What dialogue could I have used so physcians understand my problem and can be better at treating the cause of my pain?
I am going to follow up with my primary physician and hopefully he can find me a endocronologist who is familiar with this disorder in my area.
I have not noticed an increase or decrease of intensity before or after eating. Also, when I sleep at night, it is more comfortable to sleep on the affected side.
Since Jan. 12, 2006, I have seen my family physician who sent me to a gastrointestinal doc for gallbladder testing and probably removal. After a hidascan, colonoscopy, an endoscope, and many blood test, there are still no answers- everything was normal. My GI specialist referred me back to the family doc for musculo-skeletal conditions. Not sure what other test should be done, will take any recommendations and let you know what we find out!
I have also been experiencing Right Upper Quadrant Pain for almost a year now. I had my gallbladder taken out in 2002. The pain was so bad at one point, I went to my family doc, he ran a CT with contrast, multiple blood tests, and all came back fine. I missed 4 days of work and almost got fired. I am still in severe pain. He sent me to a GI doc. They did an endoscopy, and a colonoscopy. The only thing they found was mild colitis, an inflammation of the lining of the colon. The pain I have wakes me at night, causes intermittent fever, I am exhausted all the time, want to sleep 24/7, have times when I can't eat at all, am nauseated, and intermittent diarrhea and vomiting. I too have thought it may be Sphincter of Oddi Dysfuntion, but have read that not many docs pay much mind to this. I think too it may be adhesions since I have had 4 abdominal surgeries, 3 of which were open. I have had 5 back surgeries/procedures, and wonder if perhaps that could be playing a part in my symptoms.
I am seeing a surgeon today. I want him to go "look around" and hopefully put a face to this horrible nightmare of pain and disruption in my life and end it.
My heart goes out to everyone who suffers from pain that has no name or answer, and doctors who won't go the extra mile to find out what it is. They would much rather send you to a psychologist or anywhere than give why we hurt a name.
Good Luck To ALL and if anyone has an answer, write and tell us out here!
Mouse907
Well, I'd like to join the group of mysterious right upper quadrant pain that has the medical community stumped!
Anyone out there have answers yet?
I am a 37 year old female, who has had a gastric bypass (roux en y) stomach stapling, and removal of gallbladder in 2000. I had four years of great health! Then in the fall of 2004, I have acquired the same symptoms you all describe. It came on suddenly and hasn't left yet.
This nagging 'gallbladder attack' type pain, which never goes away, and is constant. Right under the ribcage, I just want to cut myself open and grab it out and get rid of it. Unfortunately we need our livers I am told. Damn....
Been through all the tests. In the beginning my Amaylase and Lipase were screwy, and then normal. No, I am never jaundiced, though I turn as white as computer paper, sometimes grey.
No fever, no white count, no nothing, HIDA shows some slowness, CAT shows dialation of bile duct, but it's running, xrays (I think I glow now) are good, MRI is good, ultrasound has nothing to say, and I am frankly being told it might be a psych problem.
I am so sick of hearing that. I have lost about 60 lbs, they say there is no cancer, thank god. I live on narcotics just to keep up with the kids (I have 4 under age 12). I throw up whether I take the drugs or not. Drinking liquid is okay sometimes, but anything else just comes back up, I am able to keep a very small part down as I am still having bowel movements. Not that I enjoy looking at the toilet, but I have seen the gamet of colours from white stool to orange, to green and sometimes purple, plus the ususal. This will be two years of illness come October of 2006.
Here's the kicker. They put in a percutaneous transempatic drainage tube which goes through the skin, through the liver, through the common bile duct and mine goes to the bowel, as my stomach pouch is connected differently due to the gastric bypass. I had a sphincterotomy done, but it didn't help with anything. The drain tube was in from Dec 2005 to May 26 2006, with tube changes as required. When the tube was in and draining properly and not blocked with sludge, etc. There was no pain - other than in my tube site!
When the tube became blocked, the old pain returned. So, we had to keep the tube clear. Which can be a pain in the *** at times.
Laying on the opposite side works best for me. Sitting just aggravates the problem. Sometimes the tube change can be a little uncomfortable if it ends up sitting on a rib.
Still waiting to figure out what is wrong. One surgeon says I need a stent put in, the other says a pain management clinic is what I need. Just wanted to share my story and glad to hear that I'm really not alone with this....
Well, I'll keep you posted and glad to have found you folks.
Take care
(warbirdz - the old warplanes are cool)
year now. I have had 3 ct's, an ultrasound, a hide a scan, a ged,
a colonoscopy and every lab test known to man. Nothing was found. I try to tell the doctor where it is and that he can't feel where it is because it is behind my ribs on the right side.
I really feel like it is my liver. When I lay down at night if I lay on my right side, I feel like I am laying on a lump! I have even caught myself checking to make sure I didn't leave a sock in the sheets. Life goes on..... Guess I will find out when the time comes and I have to go to the emergency room!
Thanks, MARLENE JOWELL
I used to feel generalized pain in the upper abdomin (abdomen) but now it is localized in the upper left section just below and underneath the ribcage. I have been through the same test as everyone else! I have had a barium enema, colonoscopy, ultrasound, you name it. Everytime I go to my doctor with the problem, I am told that I have spastic colon or "Irritable Bowel Syndrome" and they say that they cannot see anything but they must be able to see something because it feels as if there is an enlarged organ pressing against the ribcage and I feel a constant dull pain in the upper left area. When I am under stress it gets much worse and more sharp but it shouldn't be aching consistently all of the time. I share that feeling of a kind of internal sunburn as well! This is so frustrating. I am 23 years old and I've had these stomach problems since I was 15. You'd think by now I'd know what's going on but I have no idea and I'm not sure I trust my doctor's diagnosis. I'm worried that it may be a tumor forming on the pancreas or where the large intestine bends to descend on the left side of the body. Does anyone have any ideas as to what I could suggest to my doctor or what I could research myself?? I'm really at the end of my rope here and getting quite fed up with NOT KNOWING ANYTHING.
Please help!
I HAD MY GALLBADDER OUT IN 2002. I WAS DIAGNOSIS WITH LIVER HEMANGIOMA IN 1997 OR 1998. LAST YEAR IT WAS ABOUT 8CM LONG. MY DOCTOR THINK THAT'S WHY I AM IN PAIN ALOT. SHE SUGGEST I SHOULD REMOVE MY RIGHT LOBE. I SUGGEST HOW ABOUT RADIO FREQUET ALBATION. SHE GOT BACK SHE SAID THAT WILL BE GOOD IDEA. SO I DID RFA. GUESS WHAT MY PAIN IS BACK!!! SO I WAS DOING RESEARCH COULD BE I MIGHT HAVE SPHINCTER ODDI DYSFUNCTION. IT FEELS LIKE I HAVING GALLBADDER ATTACK OR TUMOR IS STILL CAUSING PAIN. I FEEL LIKING SCREAMING BECAUSE I AM DEALING WITH THIS CRAMP AGAIN. I DO APPT. WITH MY DOCTOR WHO DID THE RFA. IF ANYBODY HAVE ANY IN SIGHT PLEASE GIVE ME SOME ADVICE. THANKS
All tests have been normal, tried the naturopath route and did the liver flush, no help. Had my gallbladder out about three months ago, I knew when I woke up from surgery that the pain was still gonna be there. I lost 70 lbs over the first few months of this and have been at about 260 lbs since then. Sometimes I start to feel better but never completely. I just bought a house and have been doing a lot of yardwork and it helps keep my mind off of the pain but it never completely goes away. I had a hard time with the weedeater the other day and all of that pulling the starter cord has seemed to make this condition much worse. I have the bloated organ feeling and also pain in my right side of neck.
What could it be that we all have in common that may be a factor? I spent a lot of time on the road before this, ate a lot of fast food, spent time on sailboats in south Florida, lot of stress on my job (only stress now comes from this pain!). I think my digestive system is working too slow now. I have to eat very small portions. If I eat too much over a couple of days it really sets my back and I have to struggle through this pain. Being physically active seems to help although it is hard to do when I am hurting. It is a scary, lonely feeling when noone understands your pain and tests show nothing. We have to come together and share our underlying factors which may contribute to this condition. We should start our own group and try to work this out together. My email is ***@**** email me and we can keep each other in the know with new info. Good luck and God bless to us all.
I am putting together a support group. If you want to call me I will take your name and number and your conditions. I will let you know if someone else with the same symptoms finds any answers. You can email me at ***@**** or call me, Ricky, at 601-657-4587. We can get through this if we work together.
This whole time, I was advised to follow a low fat, bland diet. I continued on this diet and the pain lessened considerably. When the final test came back negative, my specialist suggested going back to a normal diet. This was ok for about a week, but as soon as I had a greasy meal again (crazy bread from Little Caesar's), the exact same pain was back for another three days.
Today, I had a colonoscopy and a gastroenteroscopy as well as a blood test for the liver function. The colon was fine, but my stomach is showing some inflammation. A biopsy sample was sent to a lab to test for bacterial infection as well as cancer (there were some polyps, but they appear benign).
At any rate, the pain is definitely where my gallbladder and liver are located, so I am not sure if these latest tests will be of any real help. It’s frustrating that the ultrasound originally showed inflammation, but later tests revealed no problem. It seems that once I get in for testing, most of the pain has subsided and therefore I don’t think the docs are seeing the whole problem. I'm a 26 year old male if that matters at all.
Hopefully someone else out there may know what could be causing this… thanks for your help!
when I have pain I am not sick. When the pain goes I feel stomache sick like I want to throw up, but I don't. It wears off for a little bit, returns again. Sometimes it feels like it goes to sleep. I get really sick at times it feels like I am about to faint, I also have discoloration on my face. Between the two eyes on my forehead is white , down around my nose goes white and also around my chin. I have nowhere else to turn to.
I am getting depressed and anxiety is setting in. I have been going to the doctors, just like everyone else having all these test done, nothing is wrong they are saying. Had a Hysterectomy, Gallbladder removal. I really haven't got a whole lot left to remove. I have been going to the Ciropractor, thought it was helping until it returned again. Honestly nobody knows what you are going through, they all look at you as if you are going made or something, or they say it is just your mind. I hate it when people say that. You know your own body when something is wrong. We are not stupid!!!!! Hopefully there is someone out there that can help all of us.
Good wealth, health and happiness!!!
I still experience the pain in my upper right side but more on the side around the rib cage... slightly in the back area and travels around to the front towards the belly button and blood in my urine.
In the process of countless tests since 2003, I found out I have Fibromyalgia and Crohn's disease and now I was just told I have lesions on my left Kidney and cyst on my right Kidney. The doctor told me that the cyst is not causing my pain though. He told me its my Fibromyalgia causing me the pain. I am not sure I agree with him so I keep going and going to try to find out what this is. I am 43 year old female and tired of feeling like I am 80 on some days. I can't sleep on my right side, bend at the right side, can't sleep on my back and now I am having problems sitting because the pain that is going from the right side to the belly button. The area where I have pain is so tender .. I can't lean across a table without it hurting. Can't walk through a mall or grocery shopping without it getting worse and causing me shortness of breath.
Like I told my doctor .. I know something is wrong but don't know what. I feel too bad to not have something wrong. Heeeeeeeeeelp :)
I still experience the pain in my upper right side but more on the side around the rib cage... slightly in the back area and travels around to the front towards the belly button and blood in my urine.
In the process of countless tests since 2003, I found out I have Fibromyalgia and Crohn's disease and now I was just told I have lesions on my left Kidney and cyst on my right Kidney. The doctor told me that the cyst is not causing my pain though. He told me its my Fibromyalgia causing me the pain. I am not sure I agree with him so I keep going and going to try to find out what this is. I am 43 year old female and tired of feeling like I am 80 on some days. I can't sleep on my right side, bend at the right side, can't sleep on my back and now I am having problems sitting because the pain that is going from the right side to the belly button. The area where I have pain is so tender .. I can't lean across a table without it hurting. Can't walk through a mall or grocery shopping without it getting worse and causing me shortness of breath.
Like I told my doctor .. I know something is wrong but don't know what. I feel too bad to not have something wrong. Heeeeeeeeeelp :)
In addition, back to mono... my friend was informed that once you have mono, that not only do you test positive for (if not from Cytomyalgia) the Epstien Barrs Virus forever but you also always have elevated levels. Even more, she was told there is such a thing as chronic mono and because you have elevated levels, I don't think that Drs. easily detect you as having it again.
But since I went to the leading infectious disease Dr in my area. I tend to believe him when he says that it is not mono related and that I do not have any type of infection in my body. Regardless of all my symptoms.
Now, some interesting facts that I don't know may be related to you are the following:
My blood pressure tends to be between 88 and 90 over 50, so even when it is elevated it only goes as high as 120/70 but on average at high 100/70. I consider that high for me and a sign of something wrong. The Drs consider that in perfect health. My temp works the same way. I am usually 97.6 and if I am at 98 my head is pounding and at 99 I feel absolutely horrible. Yet Drs. say healthy. I guess that is why they put me in the Fibromyalgia/Chronic Fatigue syndrome category for aches and pains.
Do you have any additional details to offer?
I basically adopted a vegan diet. No animal fats or protiens. I have been on the diet for about a month, and I have been feeling gradually better. As far as elevated WBC with H. Pylori, that is not always the case. It can be very difficult to detect. here is a site with more info - http://www.helico.com/
Please, if anyone has gotten any positive diagnostic findings that would shed light on this mystery, let me know. I am so desparate that I am about to try acupuncture.
lawdog
I too have suffered from the very same pains all or most of you have described, for many years. When all the tests came back negative and the doctors started telling me it was in my head and started recommending anti-depressants I took my health into my own hands. After much research I decided to try the natural appraoch, first I started with bowel cleanses but I still had the flank pain. I found a site www.curezone.com that describes in detail and old holistic rememdy for flushing the liver and the gall bladder(Dr Hulda Clarks Liver Flush). It's simple enough ..epson salts, grapefruit juice, and olive oil...simple nothing poisonous. anyhow long story short the method is simple enough, fast for a day or so and then drink a bunch of oil and grapefruit juice. the next morning you'll expell (thru your ***) a half a cup of emerald green stones. I've done it a half dozen times now over the course of three years and just about everytime I get around a half a cup or so of pure emerald cholesterol stones out of my liver and gallbladder(these stones won't show up in an xray or soniscan). I always know it's time for another treatment when my stool startS to turn pale and light orange and the flank pain comes back, thats the tell tell that your Liver is once again getting clogged with the stones(now they are not stones in the conventional sense they are about the consistency of a bar of soap thats been in the bath a while). So friends take your health back and at least TRY the liver flush. At the point most of you are in (where I used to be) you have got absolutely nothing to lose. The one thing I must stress is that you must do this multiple times because your Liver and gallbladder are clogged with these things...get some out, more fall down from above. Give it a try and take a cup of the stones to your idiot of a doctor that says it's all in your head.
I too have suffered from the very same pains all or most of you have described, for many years. When all the tests came back negative and the doctors started telling me it was in my head and started recommending anti-depressants I took my health into my own hands. After much research I decided to try the natural approach, first I started with bowel cleanses but I still had the flank pain. I found a site www.curezone.com that describes in detail and old holistic remedy for flushing the liver and the gall bladder(Dr Hulda Clarks Liver Flush). It's simple enough ..epson salts, grapefruit juice, and olive oil...simple nothing poisonous. anyhow long story short the method is simple enough, fast for a day or so and then drink a bunch of oil and grapefruit juice. The next morning you'll expel (thru your ***) a half a cup of emerald green stones. I've done it a half dozen times now over the course of three years and just about every time I get around a half a cup or so of pure emerald cholesterol stones out of my liver and gallbladder(these stones won't show up in an x-ray or soniscan). I always know it's time for another treatment when my stool starts to turn pale and light orange and the flank pain comes back, that’s the tell tell that your Liver is once again getting clogged with the stones(now they are not stones in the conventional sense they are about the consistency of a bar of soap that’s been in the bath a while). So friends take your health back and at least TRY the liver flush. At the point most of you are in (where I used to be) you have got absolutely nothing to lose. The one thing I must stress is that you must do this multiple times because your Liver and gallbladder are clogged with these things...get some out, more fall down from above. Give it a try and take a cup of the stones to your idiot of a doctor that says it's all in your head.
I have post part of the article, but not the link (not sure how they feel about posting links here.
When abdominal pain is chronic and unremitting, with minimal or no relationship to eating or bowel function but often a relationship to posture (i.e., lying, sitting, standing), the abdominal wall should be suspected as the source of pain. Frequently, a localized, tender trigger point can be identified, although the pain may radiate over a diffuse area of the abdomen. If tenderness is unchanged or increased when abdominal muscles are tensed (positive Carnett's sign), the abdominal wall is the likely origin of pain. Most commonly, abdominal wall pain is related to cutaneous nerve root irritation or myofascial irritation. The pain can also result from structural conditions, such as localized endometriosis or rectus sheath hematoma, or from incisional or other abdominal wall hernias. If hernia or structural disease is excluded, injection of a local anesthetic with or without a corticosteroid into the pain trigger point can be diagnostic and therapeutic. (Am Fam Physician 2001;64:431-8.)