always in pain

[khandikiser]

i have had gastroparisis for 2 yrs now  i had my gallbladder removed i get this horrible pain in my stomach like my ggallbladder was still there makes me weak last for 20 to 30 mins sometimes is this comom ? plus i hurt all the time my legs my back i cant climb stairs im 59 yrs old  

[DeborahLawrenceHale]

Thanks for that SOD link! I'll share it with my daughter.

[boodom]

I've just found an interesting link regarding ERCP sphincterotomy for SOD.
It certainly shows the prevalence of Gall bladder removal and SOD... www.joplink.net/prev/200111/04.html

[boodom]

Hi Khandikiser
I'm a bit older than you and I had my gall bladder removed in 1980. But I also had a duodenal ulcer. About 6 months later I began to have similar gall pains, it was blamed on my ulcer. I was also diagnosed in the US with hypoglycemia, because I would suddenly feel faint, but back in the UK that was ignored I was told to eat pasta.

So I have been treating these pains as if it were an ulcer, eating little and often, no alcohol and relying on Tagamet and Gaviscon (liquid) only Paracetamol for pain as Aspirin, Nurofen, Codein, or any strong painkillers caused more pain... I even took a hypnotherapy course to dull the pain, which was constant with outbursts of agony as anyone who's had gall stones knows. But they were always put down to the recurring ulcer, without even checking if I still had an ulcer... I was offered antidepressants and counselling!

So now they're trying to persuade me I'm crazy. Long term pain can have a caustic effect on the personality when you're being dismissed! So I carried on on my own, treating my so called ulcer.

About 10 years ago I started aching all over and getting short of breath, constant fatigue...  5 years later diagnosed as Thyrotoxicosis. So now everything that was wrong was blamed on that.

Thyroid removed, and 4 yrs later thyroxine levels finally correct but they found I was low on calcium and was about to have my Parathyroid checked when they found blood in urine = small kidney stones and cyst on pancreas.... BUT the CT scan and MRI scan also showed a dilated biliary duct that the hospital thought was most important; there was no ulcer.  

Less than two weeks ago I had an ERCP sphincterotomy....  I can not tell you how different I feel... I can breath...deeply!  Whether it's still the anaesthetic wearing off I don't know, but I don't ache & I can run upstairs...

But now I still want to check what I believe could be the root cause and that's the parathyroid... apparently everything to do with aching muscles and stones is to do with the Parathyroid!

I do hope my experience assists you in finding the right solution for your pain. I completely empathise.

[DeborahLawrenceHale]

I don't know if I have an answer for you, but my daughter has gastroparesis, too, and they placed a gastric pacemaker in her abdomen. Has any doctor discussed that with you? I read your question to her and she suggests it could be "post-cholecystectomy syndrome" (the syndrome that can result after having your gall bladder removed) and she says it's most closely connected with Sphincter of Oddi Dysfunction (SOD). Alice had SOD and the procedure that attempts to relieve it. Do you have good specialists where you live? I hope I've been of some help and that you can find relief.