better off dead

[kaya]

I recently posted a ? on 12/7/o1 under kaya that no one has answered.  I am an 35 year old female who is now at 88lb's and begging for help, no doctors have helped me yet. I have been in & out of hospitals for 2 years now, suffer chronic pain (now in pain management, have had 3 pain blocks, no relief). I am starting to lose my faith, I do not want to live like this anymore, I have no life, had to move in with my mom because I can't work, to sick to be in a relationship.  If someone can read my story on 12/7/01 and offer any help I would really appreciate it.  I will be praying for you all.  Happy Holidays (as happy as they can be) Thank You Kaya

[daw]

Kaya, I read your 12/7/01 post on pain and constipation. Without information on your specific tests (what was ruled out) it's very difficult for anyone to offer suggestions. What specialists have you seen? If you're not eating and you're taking pain meds then constipation is a given. Has your doctor talked to you about extra fluids, exercise and bulk laxitives? Have you looked into other modes like accupunture, nutrition, counseling?  I hope you  find a way out of all your pain.

[Concerned lady]

Dear Kaya,

I answered your post of 12/7, and I urge you to read it at that posting location (below here).

Some other things I forgot to mention are: looking for a good ACUPUNCTURIST, and a good neuromuscular therapist, like those who do "FELDENKRAIS", or "Aston-Patterning", which are tremendously helpful for PAIN of all kinds!!!

Please read my comments at your 12/7 message spot, because I have a LOT of advice AND QUESTIONS for you!!

Sincerely,
Concerned lady

***@****
http://cantbreathesuspectvcd.com

[Baseball_Mom]

To save you some time I went down below and got Concerned Lady's response to your 12/7 post.  I have cut and pasted it below.  Hope this information helps:

Dear Kaya,

I am so sorry you are having these terrible problems! But you are smart to have posted your question here, because there are many caring people here who will want to help you!

Kaya, I have suggestions AND questions for you!!!

1) Do you have a good HEALTH FOOD STORE near you? I urge you to get some "pro-biotics" called BIFIDO-BACTERIA. They are to be kept refrigerated. Get the kind for infants, because that will be the GENTLEST kind of BENEFICIAL BACTERIA, that need to be put back into your small and large intestines, in order to start helping you with CONSTIPATION, and with possible yeast (Candida) infections.

The WONDERFUL Bifido-bacteria can be mixed with good quality water, and should be taken at least twice a day.

2) Is your water supply safe? Don't drink distilled water. Well water or spring water is best ("hard" water is better than "soft" water, because necessary minerals are in the hard water.). Don't drink water that has chemical "water softeners" in it.

3) Might you have been exposed to POISONS/TOXINS, in your home or work ENVIRONMENT, or at the Dentist? This can include MERCURY DENTAL FILLINGS (silver-mercury amalgam material). WHAT KIND OF WORK DID YOU DO, that may have exposed you to harmful FUMES, like FORMALDEHYDE "outgassing" from NEW CARPET, NEW UPHOLSTERY, NEW INSULATION, SPRAYS OF VARIOUS KINDS, GLUES/RESINS "outgassing" from NEW PARTICLE BOARD, OFFICE SUPPLY CHEMICALS (like copy machine TONERS), NEW PAINT, NEW VARNISH, etc.

Do you have a Pet that had a FLEA COLLAR? or used FLEA OINTMENT, or FLEA POWDER? These contain toxic PESTICIDES that can cause NERVE DAMAGE to pet owners (not tomention the pet!!)

Do you work with LEAD, like making STAIN GLASS WINDOWS, that requires poisonous LEAD "SOLDER" that can result in LEAD POISONING?

Has your lawn or garden been treated with HERBICIDES for weeds? or with PESTICIDES for INSECTS (BUGS)??? These can cause terrible side effects in humans who touch the plants, or breathe in the fumes of these chemicals.

Has your home or workplace been treated with CHEMICALS to get rid of any ants, termites, etc.? These chemicals often poison the inhabitants of the home or workplace.

Does your home and did your workplace have windows that DID NOT OPEN??? and possibly had a BAD VENTILATION SYSTEM?

Might you have MOLD in the walls, which can make people very sick!!

FIND a good ENVIRONMENTAL AND OCCUPATIONAL DOCTOR, if any of the above might be PART of your situation.



4) Get checked by a good ENDOCRINOLOGIST, to see if you are "hypo-thyroid" (thyroid GLAND not secreting enough various types thyroid hormones).

5) PAIN KILLERS CAN CAUSE CONSTIPATION, and can GREATLY IRRITATE THE DIGESTIVE SYSTEM.

6) Do you have any very good OSTEOPATHIC PHYSICIANS in your area? They are listed in your telephone book's "yellow pages", usually as D.O., along with M.D.'s, under "Physicians".

Try to find one who does "manipulations", similar to a Chiropracter. Make sure the "manipulations" (massage and "adjustments") are GENTLE.

7) WHAT MEDICATIONS ARE YOU TAKING NOW? MANY MEDS HAVE BAD SIDE EFFECTS, that can cause terrible DIGESTIVE PROBLEMS. Ask your doctor (if you have any good one where you are) if you can stop the meds, and how quickly or slowly you would need to taper the meds, ONLY IF it is SAFE TO STOP THE MEDS.

There may be natural (holistic) methods that could work better than the meds, without bad side effects.

Which meds are you on, and for what conditions and for what reasons are you on these meds?

8) Have you been tested by a NEUROLOGIST? This is because some neurological problems can cause constipation. Also, some MEDICATIONS can cause NEUROLOGICAL SIDE EFFECTS that RESULT IN CONSTIPATION.

9) WHAT AREA ARE YOU IN, in case anyone reading this may know of a good doc in your area?

10) FIND a VERY GOOD NUTRITIONIST, who can maybe recognize what you have, and refer you to:
a) some GOOD DOCS that you obviously have NOT found yet!!!
b) gentle nourishing DIET (WITHOUT GLUTEN, WITHOUT MILK, and without other "allergenic" foods) that can help you get well again
c) DIGESTIVE ENZYMES that are gentle, yet will help your digestive system to rest and repair itself,
d) VITAMINS, MINERALS, etc.

I apologize for being so wordy, but I wanted to be as thorough as I could, for now. I am sure others will give you good advice too!

DON'T GIVE UP! THERE IS HOPE AND HELP! I wish you the best of luck in putting your health back into good condition!

Sincerely,
Concerned lady

***@****
http://cantbreathesuspectvcd.com

[Concerned lady]

Dear Baseball Mom,

Thanks a million! I will have to learn how to do the cut and paste you did for me!! Thanks for helping!!!

Sincerely,
Concerned lady

[Baseball_Mom]

Cut and paste is really easy. All you do is highlight what you want copied.  Then you do Ctrl C.  This puts the information onto the "clipboard".  Then you get into the document you want to have the information pasted into.  In this case it would be the "your comment" box of this forum.  Place your cursor in the box and hold the Shift key down and hit the insert key.  This should paste your response into the "your comment" box.  Hope this helps. I also hope you don't think I was stepping on your toes.  I just didn't want Kaya to have to look far for her answer.  She's appears to be very frustrated.  Happy Holidays!

[Concerned lady]

Dear Baseball Mom,

Thanks again for the help. You were not stepping on any toes. You were being kind, and I appreciate it! We are all in this world together, and if we can help eachother, so much the better!

I know some things, but have gaps in my knowledge. It's nice for those who know things to put their 2 cents in!! We can all learn from eachother!

I apologize if I ever forget to acknowledge other folks' helpful comments, on this message forum!

Sincerely,
Concerned lady

***@****
http://cantbreathesuspectvcd.com

[bad_stomach_guy]

Kaya, have you seen a psychologist for some talk therapy?  I know it sounds goofy but I have high anxiety/panic attacks and they cause my stomach to go nuts, back/nech pains, indegestion, diarrhea, headache on and on..  Stress on the body can cause many different pysical symtoms.  For a long time I thought that there was something very seriouly wrong with my stomach it turns out that the anxiety causes my illnesses..  I could be way off but just Hang In There and know that I (I think all of us) will be thinking of you...

[kaya]

Thank you so much for your comments, they lifted my spirits.  I have had 2ct's, 3 mri's, hida scan for gallbladder, 3ercp's(one with spincterotomy because they thought it was my pancreas; my amlayse was high, turned out not to be my pancreas they made it worse and gave me pancreatis which put me in the hospital npo(no food for 3wks, where I lost more weight.  eus, thyroid test,ultrasound, 3 pain blocks, which made me worse.  I have numerous tests done, no toxins, no parasites.  I am very holistic and went that way for a year without relief before I tried western medicine, which I'm against.  I have seen a nutritionist, acunpuncerist and chiropractor, hypnotist, psychiatrist, been treated for candida(which I don't know if I ever had).  I was only on pain killers for 1wk., I don't believe in prescription drugs, although I had no choice but to try them, so nothing I am taking is causing constipation because I can't take any pill causes too much pain. I was taking pro-biotics didn't help, I only drink bottled water(spring), I would never let my cat wear a flea collar, my house has been tested for lead, mold and radon. no chemicals on the lawn, I am now in Mahwah N.J.(North jersey). I have been to an allergist.  I will look into the feldenkrais and aston-patterning, I have never heard of these.  So you see I'm at the end here, they just say it's IBS, I have tried drugs for this didn't help, have raised my serotonin levels not help (they say with IBS if your constipated, it's from your serotonin levels too low. I can't figure out why taking any supplements cause so much pain no matter what they are, maybe just so irritated inside. It's a catch 22, I'm so constipated, I take a laxative to go (& I've tried them all) I go but then the pain is 10x worse(I think it's just the movement that causes pain.  One hint I've found, if the pain is so bad, I raise my blood sugar very high with sports drinks and the pain gets better, dr. can't explain this, I've seen an endocronologist and my electrolytes are fine.  I'm out of answers, for the past 2 years I have spent at least 4 hrs a day on research to cure myself, very confused, I could be a dr. now.  Maybe God has a plan for me, I know I have to hang in there, it's just so hard.  Drs. look at me very funny when I understand all their lingo, I don't think they like that especially because I always ask ?'s, one dr. actually told me to go on anti-anxiety drugs because I didn't yes him to death, he said I was asking too many ?s. Thank you so much for your kind time and insights, if anyone has any hints I would sure love to hear them.  I will try and help you all I have alot of knowledge in my head waiting to be used.  Keeping the faith Kaya (It did alot for me mentally seeing your responses) I was so touched by your kindness it made my cry, I'm used to dealing with drs. who just rush me or send me to another dr. because they don't know what to say to me.  I'm afraid this will kill me, my heart will stop or something. I'm also afraid of osteoporosis because I haven't gotten my period in 2 yrs. from low body fat, it also makes me sad if I don't get better I won't be able to have children. I keep saying God's will, not my will, will be done. God Bless

[kaya]

yes stomach guy, I am currently seeing a psychiatrist, I may have anxiety if I do It's on a subconscious level.  i do believe stress is the cause of almost every dis-ease. I am also doing biofeedback work for the pain to relax my muscles, I'm trying everything.  Thank you so much for your thoughts, you will be in my prayers.

[kaya]

it's Kaya, through all my tests they have found my amyalse high(they don't think that's from my pancreas though) a little fluid in the pelvic area and a herniated disc, all which they said shouldn't be causing my problems.

[kaya]

one more- I have tried the food elimination diet, everything bothers me, I can't have alot of fiber, just eating soft foods, baby foods, vitamin shakes, (don't do dairy) take enzymes, nothing helps.

[Concerned lady]

Dear Kaya,

I have some more questions for you:

1)When did these problems start happening, and what is your "gut feeling" about what is (are) possibly causing these problems?

2)What type of work were you doing, when these problems started? Were you in a "sick" building, where the windows didn't open?

3)Have you been vaccinated around the time that these problems started?

4)I urge you to try an Infant-type BIFIDO-BACTERIA that has ONLY "rice solids" in it, besides the Bifidus!!!!! I knew someone with Crohn's disease who was able to tolerate this, mixed with water, when she could tolerate nothing else!!!

5)I also urge you to try some DIFFERENT enzyme formulations, because everyone is different. My husband likes "Acid-ease" by "Prevail" (found at health food stores). I like "Total Enzymes", available from Chiropracters and other health professionals.

6)I'm glad that you will try some FELDENKRAIS, and/or ASTON PATTERNING! These are helpful for both physical pains and psychological stresses!

7)You didn't say whether you saw a Neurologist or not.

8)Have you seen a really good Gynecologist, yet?

9)What area are you in, in case others can suggest a good health practitioner in your area?

10)Have you tried the GLUTEN-FREE diet for a week, yet???

11)Have you seen a really good ALLERGIST, yet?

12)Were you in a car accident, ever? Have you seen a good CHIROPRACTER (who does only GENTLE adjustments)?

Again, trust your instincts, and follow up on your "gut instincts"!!!

Sincerely,
Concerned lady

***@****
http://cantbreathesuspectvcd.com

[Mutzi]

Have you had a test for gastroparisis?  Gastroparesis is slow stomach motility and can many symtoms.  Best to rule it out.
Mutzi

[kaya]

thank you so much for your wonderful insights, I will continue to try these new things. No I never had been tested for gastropar. would all the mri, ct. ercp $ ultrasound show this? This all started 2 yrs. ago, my gut feeling is I was too healthy for my own good, took large amounts of colon cleanses, herbs, vitamins, supplements, ate lots of fiber, juiced, do you think I just could of irritated my insides with too much, not an overdose of these things but for about 10 yrs.  I will try the bifidus for children.  I have tried many different enzymes, I worked outside with camera equipment, never been in an accident, went to about 6 good chiros., no neurologist what do I ask him to check for, if I try another gyno what do I ask them to look at?  I did get vaccinated about a year prior for hepatitis( I think it was A) I went to costo rica & had numerous tests done for parasites and took Flagyell just in case test was wrong.  How can the vacination have anything to do with this, I'm curious, like I said about one yr. prior to problems.  I've seen a really good allergist and nutritionalist, yes tried gluten free for 2 months did not help, I'm in Mahwah, N.J.(north Jersey) Thank you for all your support, Kaya  Thanks to baseball mom for your help.  You are all indeed very special people!

[Concerned lady]

Dear Kaya,

On your favorite search engine, type in "adverse effects of hepatitis vaccinations", and be sitting down when you do this!!!

Please report back to us, about what you learn, regarding this. It was certainly an eye opener to me, when I learned about how many TERRIBLE side effects there can be from what we all used to think were perfectly safe vaccinations!

There is a great book about this, by Neil Z. Miller, found in health food stores, that is an "expose" that exposes the NON-safety of vaccinations. READ THAT BOOK!

This may be the source of your problems, or it may be one of several factors. I know that you will figure it out, and probably sooner, rather than later!!!

Hang in there! You are on the way to getting well, because you are ASKING QUESTIONS!!! and not just accepting the "I don't know" of medical "professionals" who won't take the time to THOROUGHLY be like Sherlock Holmes to help you!

While you are searching, go get some Feldenkrais and/or Aston Patterning, which are VERY THERAPEUTIC, no matter what you find out that you have!!!

Sincerely,
Concerned lady

***@****
http://cantbreathesuspectvcd.com

[wife of IBS sufferer]

Dear Kaya, My husband was diagnoed with IBS about 10 years ago
he has been to just about every internal medicine Dr. in the
Henry Ford System, he has also seen several gastro Dr.s, we have
tried the high fiber diets, wehave tried the metamucil,and other
brands, we have tried all the rx drugs that have been prescribed
(the Dr.s are real quick to pull out the old prescription pad) he
has tried the enemas, the last Dr. he went to suggested he massage his intestines lightly in a circular motion going with the direction of them, it seems like it is an endless battle, he
still has pain, bloating, a lot of sitting on the toilet, usually
wakes him up 1 maybe 2 hr.s after he goes to bed, he has the urge
and sits on the toilet sometimes he will have one small about the
size of a navy bean, then it,s back to bed if he,s lucky he will
get to sleep for another couple of hours, then it,s back to the
stoll again, it,s really a rough way to live but I,m sure glad
he,s here we have been married for 31 yrs, have 4 children, one
who still is home, we all love him very much and need him in our
life.  We have an appointment tomorrow morning at The University
of Michigan, it,s hard to get a referral, but we got one we are
looking for any help there is, hopefully we may get something new.  Hang in there, I,m sure you have loved ones in your life
also, don,t give up.

[kaya]

Thanks for your comments.  Wife of ibs I sure hope they help your husband at univ. of mich. tomorrow.  Let me know if they give him any answers, I can't figure out why there is so  much sickness in the world, does it make us stronger for what comes next.  I tell you if I ever give birth, I'm sure I'll be able to handle the pain 10 fold.  Concerned lady, You are great! I had a hunge when I got vaccinated that it wasn't a good thing being very holistic and all in fact I had to go back for part 2 shot and I never did.  I will let you know what I find out.

[Keeky]

Kaya, I have irritable bowel syndrome with constipation.  Most sufferers have either diarhhea, constipation or both.  I have the constipation.  I do not like the Milk of Magnesia or such medications because they tend to throw your system too far the other way.  I also have pain when the bowel movements begin.  That is a specific symptom of irritable bowel syndrome. I had a sigmoidoscopy and I watched the tv monitor and the doctor was right.  There was absolutely nothing wrong with my bowels visually.  It was perfect as far as I could tell also, but I still had the pain and stomach problems. My doctor put me on Miralax.  It is not like other laxatives.  It adds water to the stools to make them soft. It does not cause diarrhea like most others unless of course you take too much.  It is very mild.  It is the one and only medication that has ever worked to my satisfaction.  It does not cure irritable bowel, it just helps it.  I'm sorry to be the one, but someone needs to point out that holisitic medicine can be as harmful as any western medicine.  Many of the medicines are not tested at all and can cause organ failure and damage and have serious and fatal side affects when taken with other medications.  There is a myth that because it's "holistic" it must be good for you.  Well, wheat is a natural grain which my body does not like.  You need to reach a happy medium between western medicine and holistic treatments.  There are some good things in natural food stores that do help.  I'm a believer in activated charcoal for gas, echinacea for the immune system, and Calm pills for insomnia.  My daughter was diagnosed with cancer at two and I watched an HBO special in which 7 people who all had cancer went the holistic route, all seven died.  One who chose to take the western medicine route when she realized the holistic route was failing made some progress but had gone so long without the treatment that could have saved her life, so it was only able to give her more months than the holistic would have.  There were definite changes on her x-rays with the western medicine.  Had she taken the chemotherapy earlier, she may have lived longer or even saved her life.  Western medicine does not throw out maybes at you.  They do the best possible clinical trials for the treatments they are looking for.  Doctors do not live to kill people.  They want to save you.  There is too much distrust in western medicine.  Let me also mention that my husband's grandfather died from prostate cancer going the holistic route.  My daughter is alive today, 4 1/2 years later thanks to Western medicine.  You very possibly do have irritable bowel syndrome and you could certainly have messed up your system when you were on your health binge.  I cannot pinpoint certain foods myself, but I can tell you for sure some of them, wheat products, most cereals, excluding corn flakes, sweets such as licorice, hot tamales (which I am eating right now ha ha and I will pay for later) Bagels, homemade breads, donuts, anything more than skim milk (which may be due to my lactose intolerance).  Anyway, don't get to extreme with your treatments either way.  You need to find a happy medium.  Have a doctor prescribe you Miralax.  I really can't tell you how much it has helped.  Fiber is a killer for IBS patients no matter what your gastro says.  Fiber creates a huge amount of gas for me every time.  Spinach seems to be the only exception to that.  Have I said enough? Hope this helps.

[kaya]

Keeky thanks for your comment, I have tried miralax, it gave me more pain.  You are absolutely right about your views. It's all trial and error, unfortunately we all have to be guinea pigs and find out what works for us. I pray for patience.  Concerned lady I looked up vaccinations, they didn't mention IBS as a side effect but IBD which is diarrhea.  Who knows it could of caused this, if it did is there anything I could do or is it to late?  I just met a lady(old school friend) who vac. her child at two and paralysed him, in a wheel chair for the rest of his life, he's now 10.  So many different views you never really know,  quite a gamble.  If I go see a nuerologist and gyno is there anything specific I should have them look for or will they know what to do when I tell them my story? thanks kaya

[Concerned lady]

Dear Kaya,

You are probably right about all the colon cleanses irritating your intestines. The infant/child type BIFIDO-BACTERIA mixed with non-chlorinated, non-fluoridated clean well water, I believe, can help to start your healing process.

Your trip to Costa Rica may be related to your problems, and also Flagyl is an extremely toxic medication!

The fact that the high sugar sports drink made you feel better, makes me think that you might possible have diabetes. Also, hypothyroidism can cause constipation.

You said you went to an Endocrinologist, but I urge you to go to a different, maybe better endocrinologist, to see if you might have DIABETES &/or HYPOTHYROIDISM, or some other HORMONAL PROBLEM(S)!!!

Also ask the Endocrinologist about your PITUITARY GLAND. Your lack of a period can be a clue, for the Endocrinologist, and for a Gynecologist. You say you stopped having a period due to lack of fat intake. Are you sure that this is the only reason?

Dr. Julian Whitaker, M.D. has a very helpful book called REVERSING DIABETES, if you find that you have this.

Some gentle B vitamins are necessary to help repair your damaged intestines. These can be taken along with the soft foods that you can tolerate. These can also be given to you intravenously, and will circulate to your intestines, to help heal them!

I urge you to emphasize, as others on this message board say, non-irritating VEGETABLE BROTHS. Grains may be too irritating for you, until more healing takes place. Fruits may also be too irritating until you heal more.

You may need PANCREATIC ENZYMES (taken only with some food, which should include a little fat or oil), but you may need to start with TINY amounts of the enzymes and fats, to not overly irritate your damaged intestines.

If it agrees with you, SLIPPERY ELM BARK (in powdered form) can be mixed with water, and is very soothing, healing, and nourishing!

Have you tried any homeopathic remedies? (If they have any lactose in them, take them with lactase enzymes).

What did your allergist and nutritionist think were your problems?

"Daw" recommended acupuncture to you. How long did you try it, before? I would avoid any acupuncture HERBS, as they can be irritating to sensitive intestines!

If you can find a good Neurologist, he or she should be able to test you, to see if there are any neurological problems relating to the constipation and pains. Tell your story, and see what he or she can find out, for you.

Try to find a good Gynecologist, to see if any female problems might be related to your present problems! Tell your story, and see what he or she can discover, for you.

Also, have you seen any docs who know about neuromuscular conditions?

Have you tried any gentle Yoga? Meditation? Ayurveda?

Good luck! Let us know how the BIFIDO-BACTERIA, Feldenkrais (or Aston-Patterning), Vitamin B complex, veggie broths, work for you, in addition to (if you want) more doctor visits, gentle digestive enzymes, Slippery Elm, homeopathy, etc.

Sincerely,
Concerned lady

***@****
http://cantbreathesuspectvcd.com

[kaya]

Hi concerned lady, Thank you once again for thinking of me, i will keep you updated.  O.k. I have seen a dr. about neuromuscular, they thought I had slipped rib syndrome, did 3 pain blocks made me worse, yes I do do yoga, meditation and ayurveda often. I do get vit. b shots, have tried alot of homeopathics to no avail, yes I find I can't eat grains and fruit yet to irritating.  What would the pit. gland show, how would I get tested for that?  My thyroid was tested by 2 endos- normal does that rule out hypothyroidism.  I got a 6 hr. glucose test done, found reactive hypoglycemia they just told me to eat protein with sugars, does that rule out diabetes. Is there another test to do for diabetes, and would diabetes cause all this pain.  My dad has it, I thought about hereditary diabetes, I've also read hypoglycemia(I think it's hypo that I have -low blood sugar) may be the first step towards diabetes, but would it cause extreme pain, my dad has no pain. Allergist and nutritionist did not know what was wrong.  I tried accupuncture for 1 yr also to no avail and yes the herbs were irritating. I will try the kid bif. thank you so much for all your help. Still searching Kaya

[sparkles]

i dont know if i can help too much but i wanna try.  my aunt has a similar problem.  i forget the name of the disease but it is pretty serious.  i guess every time she moves, her body will hurt for no reason...she started out just like you did, no apparent reason for it.  then it progressed to the point that she is in constinat pain and her joints will start to lock.  she says doctors dont know much on it because doctors use to refer to it as something that was just in the patients head.  it has something to do with the muscles and ligmants.  she gets around fine, some days worse then others.  but from what she has told me, not to long ago, it was just refered to as imaginare and not real.  kinda phatomish in nature to doctors because test dont show what the patient is feeling.

i dont know if you have the same thing...but if you do...just hang in there.  my aunt is close to 6o and she trys to make.  some days she cant walk, but she still trys to make it.  

just remember...the second you start to give in, is the second you give up.  dont do it. i am going to pray for you and hope you get better.  God is with you, and wont turn his back on you.

[kaya]

sparkles, thank you for your insight and kind words and prayers, I could use as many as I can get.  I try to stay strong and I know God is with me. God's will, not my will, will be done. I just try to go with it knowing it has its reasons, walking be faith Kaya

[kaya]

Concerned lady or anyone else, I tried the child bifidus(with rice only) and the symptoms I'm experiencing(which I have felt before with good bacteria) I feel like there's alot of pressure in my throat and chest as if I can't breathe, my chest cavity feels expanded like filled with gas and I feel like there's an elephant sitting on my chest, even with the smallest amount.  My nutritionist said she has heard of this before but no clue as to why or what's happening.  She thinks my body needs it but it's just so severly irritated right now, any clue as to what's going on? Thanks Kaya these symptoms last for about 3 hrs. after I take it.

[Concerned lady]

Dear Kaya,

You might try the bifidus in warm water as an enema, since the large intestine is the place that it would end up, anyway. Some of the bifidus will stay in, and hopefully help to "re-populate" the beneficial bacteria.

Also, have you tried the Slippery-elm yet? (mixed with water). It is very soothing, healing and nourishing, if your body will tolerate it.

Maybe another visit to a GOOD allergist, and a GOOD gastro-enterologist (if you can find them) would be in order! But remember also, to see a GOOD ENDOCRINOLOGIST, about your possible diabetes &/or hypoglycemia, and about possible hypothyroidism that doesn't always show up on the thyroid blood tests, or some other hormonal problem(s).

Also, maybe see another GOOD Neurologist.

Yours is indeed a tough case, but I believe you will eventually find answers. Good luck to you! Follow those "gut instincts"!

Sincerely,
Concerned lady

P.S. Which brand of infant bifidus did you try?

[Concerned lady]

Dear Kaya,

What is "slipped rib syndrome"? What causes it? Please explain about the pain blocks.

Try the Feldenkrais &/or Aston Patterning, because your problems may be partially due to whatever the slipped rib syndrome is!

Read that great book called "Reversing Diabetes" by Dr. Julian Whitaker, M.D., that has innovative holistic ideas, and probably includes your "reactive hypoglycemia" too!

Don't give up! You might want to consider sublingual B vitamins, rather than the injections, because, I read recently, that there can be very BAD SIDE EFFECTS sometimes, from the injected B vitamins (maybe due to some other ingredient in there).

You can check a great bunch of NEUROLOGICAL websites, at http://braintalk.org

These neurological forums are sponsored by Massachussets General Hospital (MGH).  

They have forums about NEUROMUSCULAR, PERIPHERAL NEUROPATHIES, THORACIC OUTLET SYNDROME, CHRONIC PAIN, BOWEL PROBLEMS (related to neurological problems), AND OTHER neurological PROBLEMS!!!

There are some VERY knowledgable folks on those forums (especially the PN--I forgot whether that is Peripheral Neuritis, or Peripheral Neuropathies...) who can tell you which B 12 vitamins are going to cause fewer side effects than other forms!

It's best to not take one "B" vitamin, without the others. All the "B" vitamins work together in "Vitamin B complex". Too much of one, can cause an imbalance in another. It's a great website that I think you should check out!!!!

Good luck!

Sincerely,
Concerned lady

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http://cantbreathesuspectvcd.com

[kaya]

Hi concerned lady, Thank you for thinking of me.  I have tried the slippery elm for a long time now irritating, will try the bifidus in an enema, I have done that before, nothing really causes slipped rib, it's just when one rib cage is lower then the other, I go to the chiro for that.  Pain blocks are when they inject pain medicine into the area, did not help and now totally against it as the meds totally lowered my immune system, they tried 3 different times with 3 different meds.  I do take the sub. vit b complex dots.  I know how to control my hypoglycemia, when I put my self into that state by eating alot of sugars, the pain gets less, I have told this to about 10 drs., no one knows, I'm still searching.  Kaya

[flipper]

Dear Kaya, I can sympathize with you. I was diagnosed with IBS 3 years ago and keep getting sick to the point of it taking over my life. I just recently was given a fairly new medication called Dicetel. Have you tired this?

[dida]

Dear Kaya,
I just happend to come across your problem. Read all peoples responces. I see that you stoped writing after Dec. 15. It makes me worry and wonder if you are OK?
I have a few coments of my own to see if this will help you.Hope you will read this.Please let me know if you did.
1.I do not know what the outcome of the infant bifidus was lately for you.I am not going to describe here my problems/less seviere that yours/. I also have a problem with taking the bifidus products. Tryed severall diferent brands. Gave up on it. They actially iritate me more. I am curently taking Multy Asidophilus capsules that have no bifidus in it.the brand name is Natural Factors, produst of Canada. It is distributed by
Natural Factors
Everett, WA 98203
The product has all the good intestinal bacterias except the bifidus and I feel fine. The bifidus seems to have cosed me more troble than good. Made my son very sick, and me too every time I tryed it.What actualy may be better is to try a product with acidophilus only and see how feel. There are many out there with diferent combinations of potency and kind of the bacterias. I went to trial and error to find what works best for me.
I also do not eat ANY dairy products for 8 years now. I am almost free on my previous problems with IBS.

2.Do not take multy vitamins. I have allergies and only take the vitamins saparate not in any combination. Start with dairy free nonallergenic rand and a low dose. I cut the plills with a coocking knife to the 100%RDA recomended daily dose. I also do not take the same vitamin that 2-3 days apart. Also start with onw vitamin at a time to see if it will make you sick. If not add another one and etc. I found that I am allergic to vit. E and get headeck and a rash on my face, feel allergie attack too. So I avoid ANYTHING that has it, from food to cosmetics etc.

3.For impruving your immune system there is so much out there but it will make you even more sick. So please try the following.
Put a warn flaxseed or see salt/or else/ bag on your belly every day for 5-10 minutes. It is suppose to impruve your immune system. At least it will not hurt you.Hopoe again you are OK and one last thing a forgat.

4. Ask to be tested for Helicobacter!!!
I did and my levels where slightly high but the doctor said it is
OK. This is a bacteria that is in your stomach and over time can cose ulcer. In a mean time wast making my stomach and intestines to hurt after eating most of the food. One day the pain was so bad I had to lay imidietely on the floor. Got the test again and was juuuust a little higher and doctor said it is still OK, but I said it is enough for me. He gave me the threatment that made me very, very sick for the time. After that I was fine and still am.

Dida at
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[dida]

Me again. Sorry for all the bad spelling it is too late to think.  I mean warm flaxseed bag. and Helycobacter /maybe!/
Dida