ok I am a 31 year old female and I had suffered with endometriosis about 2 years be fore my dr's would hear Me out but I did get full hysterectomy done when I was 28 and I had not had any problems just some times would cramp up bad some signs of Ibs but very slight then I never did say any thing because it went away I am now sitting here suffering from gallbladder symptoms i went to the hosp with chest pains (6 days ago from this date ) and they did their usual check and tests ekg and the blood work and chest x ray's were normal but I still have the upper chest pains on the right hand side look just below my breast also i have had the skin around My eyes go dark like a yellow tint also a week before all of this came about I stared with heart burn no change in My diet and started to get Nashua most of the day after I eat) so after the er i went to my dr and she recommended an ultra sound to be done and so ultra sound was done they showed neg results. so the dr asked me if I was still havening the same symptoms I said yes ( the er gave me vicodin500mg for the chest pains and phenergan 25mg for the nausea and prilosec 20 mg for the heart burn witch takes the edge of most everything I have ) now I am going in for a pipada scan if i spelled it correctly but could this all be linked to endo even tho I had a full hyst ??? any one have any Ideas ?
Endo can return even after full hystoectomy. The little endo implants hide and grow every month with your normal production of estrogen (if you kept your ovaries or at least 1 ovary).
If ovaries were removed, then estrogen from hormone replacement therapy can cause endo to regrow.
Even soy (phyto estrogen) can cause endo to grow.
Are your current symptoms like those you had previously with endo (previous to hysterectomy)?
I surprised ER did not check stomach, like upper GI or endoscopy. Also should check liver function.
the ER doesnt do much anymore... when i went they told me that other than the ultrasound and xray's i had, any kind of outpatient procedure was to be done by my family doctor... it surprised me at first, when they told me that... but i just think the doctor i had was an *** lol
well great just when you think you win the battle its come back like a thief in the night they well they said they(the ER ) checked my liver and everything and I hate hear your so young to be going threw this and some symptoms remind me of the night mare of endo and its funny because this problem did not come till I went back on my hormones (lost my job and could not afford to take them for 2 months) and was on them for a week when all this hit me like a ton of bricks well I am going to the dye test god willing they find some thing wrong ..... and the fight goes on thanks for the input I will keep in touch thanks
oh to answer the other question I had a radical hysterectomy my Dr took it all too bad i moved to another state i have been thinking about contacting him and getting my pathology reports on all tests done on me and ask my present doc if she knows any thing about endo or i there are any docs here in Nebraska that specialize in endo well i will keep you all posted on my results pray they find the answers oh a few more things to add the the list of problems the skin around my eyes has been turning darker kind o looks like i have not been sleeping but i get a full nights rest 8 to 9 hours and also this is a bit odd I can eat and eat and eat but never seem to get full any one elses know what that is ???
The "er" is extremely rediculous for endo sufferers.
I have had the great pleasure of reading your comments and find them extremely comforting. Suffering with stage 4 endo for 4 yrs has helped me appreciate quality of life and encourage other women inherent with this mysterious disease to speak until they are heard.
Get to know your own body. What works for one woman suffering from endo, may not work for another woman suffering from the same disease. If you are having issues with any part of your body, be persistent. Demand that a specialist listen to your needs. If you are not completely satisfied, continue to seek help until someone listens.
Unfortunately, there are not many experienced medical proffessionals who can diagnose and treat endo. That does not mean that all is lost for you or me. It just means that we have to fight a lot harder for proffessionals to take this illness seriously and encourage other women to be a voice. Remember: If you can document or date when or where your symptoms occur, it can give professionals a link that may help better understand your needs. Creating a personal history of your body can also help ensure a better quality of life: What causes you stress, What foods you eat, What deprives you of sleep, medications you take, etc.
Have I found a cure for my endo symptoms... certainly not! However, I have learned to listen to my body and not so much the doctor. I am confident that we can find a cure that works for us.
We are the pioneers of this dreadful disease. Never, ever be discouraged or give up.Continue speaking out and demand the help that you deserve.
I am so happy I found your post.I have been suffering from endo almost my entire life but was only dx about 7 years ago.since then I have 2 boys and in 2008 I had a hysterectomy. I had many endo surgeries before that. I was at my gynae this past week and he did an exam and said that he thinks my endo has come back full force as I was extremely sensitive and painful on my 1 ovary and on my vaginal cuff.I had a LAVH and was left with 1 ovary and tube.He prescribed progestrin for me agan.I had it for 6 months last year and it was wonderful.He says that it shrinks the endo or makes it dormant.So I am back on it for life if I want to be.Anyway I was in the ER last week with severe pain on the right and left side.The day before saw my reg. dr and he said he thinks gall bladder so he said to do a ultra sound.pain got so bad that I had to go to ER that night.They did CT of pelvis and abdomen and all negative.Blood work too except for UTI that they never mentioned.So I called my G.I. dr as my reg. dr said he can do nothing more.I am having an endoscopy tom to see if I have ulcers or something else.But I was wondering if my endo could effect my colon and gall bladder too.Once before I had to have surgery as endo caused a kink in my bowel and caused severe pain.I have a lot of other health issues so I want to try and stay on top of this as I have 2 little ones to take care of.I have fibromyalgia,hyoglycemia,hypothyroidism and adrenal fatigue and I.C. as well. I am nauseas all the time and living on emetrol so I can eat a meal.I really hope the G.I. dr finds something. I really hope their was a dr that could link this all together.
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