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celiac sprue

by Tara13, Dec 28, 2007 06:40PM
I was recently diagnosed with celiac disease.  I had a biopsy of my small intestine and it came back positive.  I then had the blood test for the antibodies to confirm the results.  The blood test also came back positive.  The reason I went to the GI doctor in the first place was because I was anemic.  My problem is... I don't feel any symptoms of celiac disease.  I've never had the typical GI symptoms associated with the disease.  I've never had any pain, bloating or bowel issues.  Nobody in my family has celiac disease.  My parents were tested and they were both negative.  Could this possibly be a wrong diagnosis or am I just in denial?  Is it possible to have a mild form?  I've been taking iron supplements and I am no longer anemic.  Can I just follow a regular diet and continue to take iron supplements?  If gluten is causing damage to my intestines... why can't I feel it?  Thank you for your input!!
Member Comments (2)

by boron, Dec 29, 2007 06:47AM
Almost one half of celiac patients have no symptoms at all, but they have intestinal changes, antibodies in the blood, and anemia. You can be really sure, your diagnosis is accurate, especially blood test is reliable one.

Your parents *may* have celiac disease without any symptoms, but if they were not tested, this can't be said. It is not the disease which is inherited, but predisposition for the disease is. A person is predisposed for celiac disease if he/she have one specific DNA change, which can be tested. Having this change does not necessary result in disease. If one member of a family has celiac disease, about 1 of ten other familly members is likely to have it.  

by CalGal, Dec 31, 2007 07:11PM
To: Tara
Please don't follow a regular diet. If you do, you may end up with long term problems that you wouldn't wish on your worst enemy. People with undiagnosed celiac can have problems that can end up looking like MS or other disorders and the symptoms you'd end up with down the line would be horrible.

Please, please, please start on a GF diet today and stick to it. There is no such thing as mild celiac - it's all-or-nothing. I only wish my husband had found out years ago about his condition. His condition didn't turn up in the blood tests, and if those are how your parents were checked they should be rechecked via fecal antibody test. It's a much better way of detecting those who have few symptoms.
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