desperate and tired of being sick...

Hello. I'm new to the site and am getting desperate for some answers. I know only a doctor can solve my issues but sometimes it's helpful to talk to someone who has been there. I am now 28 and have been having sometimes severe GI problems since I was between 13-15 years old. I have diabetes. I also have been told in the past I have gastritis, stomach ulcer, GERD, gastroparesis (not definitively), NASH, and pancreatitis. Currently I am in horrible pain, have the worst diarrhea and vomiting on an almost daily basis, I have lost about 30 lbs in the last 4 months, and have had to make several trips to the ER because of these symptoms. I also have developed erythema nodosum on my legs (from what I understand this is necrosis and inflammation of the fat under your skin). The erythema nodosum is linked to many different things but supposedly only last for weeks. I have had it since JULY and it HURTS! The diabetes complicates everything it seems also.

I have changed my diet recently to a gluten-free, low fat, low carb, low residue with little to no dairy products recently hoping this would help. Not fun but can't eat much any way and pain is a big motivator. I am currently prescribed insulin (novolog 70/30 mix), questran, lomotil, zofran, and codeine. I also have vicodin to switch with the codeine if the pain is too bad. Despite these meds I still have days when I'm stuck at home or have to wear a depends because the diarrhea is so bad. A few weeks ago I had a bad bout with pancreatitis and had to go to ER. I have since seen a GI and he is saying no to the pancreatitis and sticking with IBS. I know I have IBS but it has never caused me so much pain and I have never lost weight with it. It also doesn't explain many of the other symptoms. My PCP is referring me to a different doctor that specializes in the pancreas and liver with an ERCP clinic.

In the meantime any thoughts, suggestions, additional ideas on how to cope with this? It feels like a lost cause and I'm getting to the point where sometimes I wish I would just die because the pain is so bad. I'm 28 I should be out having fun, able to work, and enjoy life....not stuck at home in a diaper vomiting and crying with pain...just feeling really frustrated right now :o( I'm not giving up but really tired.

Thanks for any help.