desperate for help

I despertly need help in treatment for my gastroparesis.I am 35 and recently went through this whole motility study of my stomach,for what yup to say I have gastroparesis,which i already know. I had that done on october 9th.I heard from the doctor and all he really told me is to keep taking the massive drugs i have been taking and to eat soft liquid diet.I have not had solid foods since the end of september and he said that he has patients that have been on liquid diets for over a year. All well and good for them.where does that leave me?I cant eat any food I am weak,I have such pain in my stomache everyday not to mention the nausea and vommiting that I experience everyday. What are the treatments for this does anyone know what I can do?I dont know how to talk to my doctor and what to say i want done.I know that at 35 I just cant live like this.Please help me

[yoshi]

Does the motility drug work??

[sunshine5]

Nope the meds dont work and I think i am on everthing there is out there.I did check out the site you gave me thank you.I know all the treatments I just am confused as to what my doctor is thinking at this point because i have been on liquid and very soft foods since sept.and I have severe pain and nausea evey day and I dont know what to do.thank you for reponding

[yoshi]

Are you diabetic?
What medications are you taking?
I read somewhere that the opening between the stomach and the large intestine is similar to the LES and it wont open if there is not enough stomach acid to digest the food in the stomach.It makes sense,think of it,why should the food move on to the next stage if it is not digested yet??
I hope you are not taking any medication which curbs stomach acid digestion or you are eating high fiber /oily and greasy food or dairy products??
Have you been checked for H Pylori bacterial infection,have you have your stool checked?
Have you been on antibiotics or sugery.

[sunshine5]

the h pylori two weeks ago with the motility study they did a biopsie to check for this but the doc has not gotten back to me.He doesnt get back to me in a very timely fashion.so i dont know the results.as far as my diet i cant get any blander.i have been on a liquid diet and very rarely soft foods such as white rice mashed potatoes etc. I am losing weight like crazy and from what my doc says hes had many patients that live very well like this.meds oh my good let me tell ya i take something every hour it seems. I do take prevacid twice daily because they say I have barretts esphogus(i think I spelt that wrong)i also supposedly have irretable bowel syndrom (syndrome) and have one bowel movement once a week.I do have antibiotic therapy i take erithemicin 1/2 tsp everyday twice a day.lets see i take reglan 4 times a day,adavan 4 times a day domperion 4 times a day marinol 4 times a day, amzemet 4 times a day zolfran 2 times a day.since i have nauesa everyday so i take copozine suppositories twice a day.Since i have a thyroid condition i take synthroid.i also have tracycardia so i take pindolol for my heart.Oh I als forgot that they put me on deseprimine, and at times i get migrains and have to take imitrex.these meds dont work for me and hell i dont know what eles to do.I am not diabeic.today i needed to go to the doctors again i guess i have some type of urinry infection and they had to hydrate me. I am so weak and I am in so much pain,and i bet you i will be in the hospital before long.thank you for the help and will take any help you can give me. I know this is alot but i am going through alot. thanks

[yoshi]

Stop taking all that medication for your stomach,OTC or prescription,it is not working for you so why take them?I bet they are  partially responsible for your problems-prevacid twice a day/reglan 4  times a day,mylanta did I read that right?
STomach acid kills bacteria coming into your system,you are all screwed up!
Too much prevacid will curb stomach acid production and so more bacteria grow,it could cause constipation,urinary infection,vaginal infection and lung infection.Reglan is not working,so stop taking them and watch what happens.
You also need a better doctor,ditch this one and go for a better doctor.
dont take any new stuff yet,just keep eating soft /liquid diet .

[sunshine5]

the doctor said that all these meds are keeping me out of the hospital,but just barely.I am so weak and still in alot of pain.I definitly see what you are talking about I dont know where to look for a new doctor. I am supposedly seeing one of the best gastopareis doctor in the state of new hamshire and the northern new englan area.Do you know another treatment would be better for me?Do know of any other treatments?about that toxin cleanser what should i take. I think that the uti isnt better and today as of right now i have a low grade temp of 99.5.with my history it goes up as the day goes on.Thank you all and i want you to know i need all the help i can get and i appreciate any info anyone has to offer.

[yoshi]

here is some information on Reglan and tardive dyskinesia.
Doctors in this country have stopped prescribing Reglan years ago and you said you have one of the best in your community??
Dont try any new drug until you see what happens when you stop taking some of the drug you have been taking.
As for cleaning your system,keep your bowel moving,else the toxin stays in your body and brew more toxin.
The symtoms (symptoms) of too little acid and too much acid can be confusing,one way to find out is to sip some cranberry/pineapple or even orange juice and see if you feel better,they will raise the acid level in your stomach,If you have been taking prevacid twice a day for too many days,you may just have not enough acid to digest food,causing pain and constipation and nausea and headache.

[yoshi]

How about your GP,someone who knows your medical history ?
When I was on prevacid/nexium/prilosec/reglan I notice if I keep taking them twice a day,I will have a headache and I dont have enough stomach acid to digest my food and there is this bulge in my stomach,then I become constipated.At nite,I will pass gas with weird noises.
I have also tried OTC Mylanta,Gas-x,Zantac etc,baking soda,alka selzer,red delicious apple and chewing gum.
Now I take nothing and my situation has improved,during the day i chew some gum and avoid food which could cause acid reflux,now I can even drink soda and milk with no problem.
I still have acid reflux at nite so i go to bed with a glass of water,when the acid backup,i drink some water to wash it down.
Red delicious apple is good for your stomach,so is chewing gum as it will encourage your mouth to produce saliva which contains bicarbonate and it will neutralise the gas in your stomach.
I tried Reglan and it did nothing for me,I thought doctors dont prescribe Reglan any more due to bad side effects,there is another motility drug they prescribe which is more effective(I got my Reglan from Mexico).
If you google ,you will find that these PPI of the world(prevacid,nexium) will encourage the body to produce a hormone which will encourage the stomach to produce more acid so it is a vicious circle.
If you have no one in the field to talk to,then talk to your family doctor.
Stay away from REGLAN AND PREVACID FOR A WEEK,AND WATCH WHAT YOU EAT,I BET YOU YOUR SITUATION WILL NOT GET WORSE.

[sunshine5]

i will give it  try what eles do i have to lose.I just hope i can keep everything down and not end up back in the hospital.I get so sick if i vomit.thanks all we will talk soon

[sunshine5]

hi everyone i have stopped taking the meds and things are not going well i am already starting to get sick.not to mention that i am not able to keep things down and i am getting weaker like i am going to collapse what now?

[yoshi]

I believe you can call the doctor on this forum,go to the home page and get the phone number

[sunshine5]

thank i will look into it

[yoshi]

Sorry,it used to be you can call,now they took the option out.
But I think you can still try if you know where his office is.

[sunshine5]

call the doctor from this site?I know you can e-mail for $16 but i didnt know you can call.

[grandmaoceans12]

Check out info on the web regarding Candida.  Do some research!!!  Western medicine denies that the average person can have it but they are wrong.  Anyone who takes antibiotics, HRT, Birth Control Pills, eats meat, has taken steroids, drinks chlorinated water can have a fungal overgrowth and that will cause so many problems it is unbelievable, especially GI problems.  

If you mention this to your DR he will deny that is your problem, but he doesn't seem to be helping you. Drs are trained to give medication or cut.  There are so many med. problems, especially GI, that there is no way they can keep up.  Also the drug companies do everything they can to help the Drs keep you on meds. I have come to the belief that we have to take more responsibility for our health care.  With the info available on the internet we can find a lot of the answers ourselves.  Please give the Candida research a try.  

Don't know if we can give out our email add or not but I do have some good sights for you to search if you are interested.  My add is ***@****