gastroparesis

[mrsh04]

I was told by my doctor that I have gsatroparesis about seven months ago.  I have tried everything that he has suggested but I'm still uncomfortable and unable to function day to day life.  If I take laxative, only way to go the bathroom, I have accidents.  I take Domperidone three times a day, nausea medicine and a mild muscle relaxer.  I felt great for about a week taking pain medicine but like he told me this was not the right direction to go.  My stomach stopped working so hard I couldn't get up out of bed.  I know it sounds silly but I was unble to move my mid section for a few days until they got out og my systom.  My stomache doesn't girglge unless I lay flat and is always swollen and so uncomfortable.  It feel like I always have done hundreds of situps or something.  Not that I'm complaining but I've lost thirty pounds.  I don't feel healthy and always tired.  I have tried taking regular swallow vitamins, chewable and disovling  but they still make me more sick to my stomach. I do follow a very boring bland diet because otherwise I get to sick. Anyone with advise!!Please!!!

[mrsh04]

I can't really say the Domperidone makes a huge difference but I do notice a very little change.  I didn't have to go to Canada, you just have to find a pharmacy in your area that makes compound drugs and you can get it there easier. My doctor is now thinking of trying Botox injection to a part of the stomach.

I am sorry to hear that you sound like me but good to know I'm not alone.  It seems like such a simple disease but boy is it painful.  I still have my gallbladder.  All of my disease was brought on by two surgeries to remove my ovaries and large masses during 2007.  I ended up with a complete hysterecomy and almost lost my colon this past October.

I am also a mom of two small children and feel bad for them the days I can't function to well.  My husband has been great and I am lucky (somedays!!!) for him.  I could not have made it this far physicaly or mentaly without him.  I am surprised you were able to get disablity.  I tried and was told my problems were all fixable.      

I have tried different drinks and have a hard time with most of them due to the fullness I get from them.  I often wonder how my nutrition levels are.  I heard some people can get vitamin b shots so it's easier on the stomach.

Thanks for taking the time and giving me your viewpoint and please try the Domperidone for some it is wonderful.  

[emily7sean]

I also was diagnosed with gastricparesis back in Sept. 2006.  I lost 20lbs in less than 2 months.  I had a feeding tube inserted down my nose because I was so weak and also had a hard time getting out of bed.  As soon as I would raise my head I would start vomitting.  I vomitted the feeding tube up within an hour.  I refused to have a longer one inserted.  I went on a liquid diet.  Soups, Carnation goodstart, SlimFast(the control hunger one) and shakes.  I didn't  vomit as much.  I took Reglan and couldn't handle the side affects.  Than I used Zelnorm. I started to put weight back on and was able to start eating solids.  The FDA took it off the market about a month later.  I tried Erythamcin next and broke out in a rash.  My GI specialise just told me he could give me a perscription for the Domperidone and I could get it in Canada.  Have you had any relief from it?

I feel so weak,tired, shaky, and the nausea is constant.  I'm taking Zofran for it but lately it doesn't seem to help.  i had to quit my job and now I'm collecting disability for this.  i just had blood drawn to see if I'm having problems with my liver or pancreas too. i have to go in tomorrow for another Hida Scan.

Do you still have your gallbladder?  I was diagnosed with gastricparesis after I had my gallbladder removed.  I'm really interested in finding out if the Domperidone would help me.  Sorry I didn't give any advise to help,  but believe me after searching on the internet I can't believe how many people suffer from gastricparesis.  don't feel like your complaining.  When I say I don't feel good my boyfriend now responds with " So whats new your sick everyday."  I fell into a major depression the first few months I was diagnosed.  I honestly feel if it wasn't for my boyfriend cooking for me that I wouldn't have started back on solids.  I'm 37 and a single mother of three.  Because of being so weak sometimes I feel like I'm withering away and that my children are missing out on so much that I should be doing with them.  

I also tried vitamins and felt they were making me sicker to my stomach.  I drink Muralax 3 times a day in order to go to the bathroom.  It doesn't cause the cramping and ergency that laxatives do.  I was told that the laxatives can deplete your stomach of digestive enzymes, creating a more problem with the stomach.  Not sure this is true or not.  You may want to find out if a feeding tube would be beneficial for you to get more nutrition. I was suppose to have it for two weeks.  I would appreciate it if you could give me some information on the Domperidone.  You can email me at ***@****.  Thanks!