Gastroenterology Community
if not Zollinger Ellison then what is it
About This Community:

This forum is for questions regarding Gastroenterology issues such as Acid Reflux (GERD), Barretts Esophagus, Colitis, Colon/Bowel Disorders, Crohn's Disease, Diverticulitis/ Diverticulosis, Digestive Disorders and Stomach Pain.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

if not Zollinger Ellison then what is it

I am  29 year old woman.  Ever since I can remember I have had a "sensitive" stomach.  For years I thought it was just stress as well as most of my doctors.  I was put on prilosec as a teenager and back then it was prescribed...not OTC.  I would have issues off and on throughout my life.  I've never been able to drink much because my stomach doesn't tolerate it.  I don't take aspirin or any NSAIDS as they too have upset my stomach and make me sick.  My symptoms have gotten drastically worse in the last two years. Originally my Doctor and I thought it was just stress because I lost my husband to suicide and months later I lost my son to cancer but my symptoms were persistent.  I started having diarrhea badly and vomiting almost daily.  I had a scope done and it showed severe gastritis with a small ulcer.  I was put on nexium results for H. Pylori were negative. Symptoms improved but only for  a couple of weeks.  Once again I am vomiting and no appetite.  I have lost over 30lbs without trying.  6 months after the first scope I just had another one done.  This showed that in less then 6 months I now have 6 large ulcers, but none in the duodenum.  Biopsies were negative once again for H. pylori and celiac disease.  Doctor has me do a fasting gastrin test.  It came back elevated at 1045.  My doctor then told me about ZES. They want me to re-do the gastrin test after being off of nexium because I had started taking it 5 days before my test.  My question is can taking nexium for 5 days elevate your gastrin levels that much that fast?  Also if not ZES what is another likely cause??  I am in treatment but can never get answers fast enough!!! Please help.
Related Discussions
5 Comments Post a Comment
Blank
Avatar_f_tn
Welcome to the gastroenterology community!  The ulcers worry me, especially because the tests came back negative for h pylori.  Do you ever take NSAIDS's anymore?
Blank
Avatar_f_tn
No I don't anymore. I never really have other then excedrin for my migraines but I even stopped that.  Haven't taken any NSAID's for at least 7 months.
Blank
Avatar_f_tn
And the endoscopy that showed the ulcers was recent (long after you stopped taking NSAID's)?
Blank
Avatar_f_tn
yeah. My scope was just done last week...and I went from one small ulcer to 6 ulcers in about 7 months time...I was also on prilosec then switched to nexium and the ulcers still got worse.  I still can't eat much and am loosing weight. I am just tired and want to know whats going on with me.  Do you think I fit the profile for zollinger ellison syndrome?  My gastrin levels were elevated a little above 1000....but I was on nexium at the time.  I really hate having to wait to figure out what's going on.  Sometimes I feel they never will figure it out
Blank
Avatar_f_tn
Yes I do think you fit the profile for zollinger-ellison syndrome, but it is very rare.  I hope you figure out what is wrong very soon and find some relief soon too.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Gastroenterology Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
This is Driving Your Emotional Eati...
Jul 02 by Roger Gould, M.D.Blank
5856747_tn?1403352282
Blank
Sleep Apnoea
Jun 28 by Andrew John Rynne, MDBlank
Top Digestive Answerers
Avatar_f_tn
Blank
CalGal
CA
Avatar_f_tn
Blank
remar
st. louis, MO
Avatar_m_tn
Blank
Morecambe
Weybridge, United Kingdom
168348_tn?1379360675
Blank
ChitChatNine
974371_tn?1364538460
Blank
Margot49
Central Valley, CA
Avatar_n_tn
Blank
cnoevl21