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pancreatitis mystery

pancreatitis mystery

I have had ( w/fistuals ) crohns for over 25 years ; 1 surgery and on remicade. A few weeks ago I was tested and my lipase levels were over 700 . I was so scared after being dx with severe pancreatitis and doc told me to either stop eating or get to hospital . I stopped eating for 4.5 days and my levels went back down to 45. 2 weeks later back up to 250 .. now I am pending a new test result. I don't have the severe ab pains that I have read about : but what I do have it  back pain ..constant - some shoulder pain and some weakness in arms ( intermittenly ) - I have fatigue - I am sweating one minute and cold the next -

No one is telling me anything -  no one knows why I have it . I am not sure what is going on and do not know what to do next. Is it possible someone could be wrong since I am not having the severity of pain in my abdomen?

Should I just wait it out or look for new docs ?  One doc says get my gall baldder out ( because CT scan showed stones that had been there since last scan in 2005' ) Other doc says no, leave them alone...

Another wants to do the ERCP next ?? I am not sure what to do ! Or who to see ... I feel so very alone and really scared ..
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I have suffered from acute pancreatitis and now chronic pancreatitis all resulting from a botched ERCP.  I would highly recommend you search for the best doctor to perform that procedure even if it means traveling to another city/state.  Having your gall bladder removed could help alleviate your symptoms especially if stones are present, however you may have problems with the sphincter of oddi which is best evaluated by doing an ERCP.  Good luck, seeking multiple opinions can never hurt.
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