pyloric stenosis scartissue(infant)causingproblemsin adult

[lindacarol]

Pyloric stenosis surgery at age 6 weeks. Now, as an adult, (age 42) severe gastro problems. Cramping, vomiting, extreme pain. "Attacks" come anywhere from every 3 or 4 months to 7 or 8 months. are very debiliting, and last several days. This has been going on for at least 15 years. Drs. could not find cause and even removed appendix, until someone thought it might be a result of the pyloric stenosis surgery as an infant and resulting scar tissue.  Is any one else who had this surgery in infancy experiencing these problems? Can anything be done?

[BreeT]

I had Pyloric stenosis surgery at 2 weeks old. I have 2-3 inch horizontal scar on my right side. The scar is puckered, which I'm assuming is excess scar tissue. It feels as though it is connected to my ribs. I have been researching plastic surgeons to have this corrected. I'm a little nervous that when I become pregnant whatever the scar is connected to, will not stretch. Over the past 2-3 years, I have noticed a severe increase in acid reflux to the point I feel I need to cough. I haven't noticed anything as severe as cramping or vomitting but after doing some research on here, I'm wondering if the acid reflux is a sign of something gone wrong. Now that I understand more about the surgery I wonder if the muscle around the pylor has overgrown again. I don't know if anything can be done. I'm surprised they haven't tried to go in and remove excess scar tissue.

[Dgartner]

I am 27 weeks pregnant and I have the same pain. It feels as though the scar is some how attached to my ribs and my growing belly is pulling on it. It feels like something is slowly being ripped inside of me, some days it is a slight ache while others it is a throbbing/shooting pain on my side. It seems to come later in the day, as if the pull of the weight of the baby is straining it somehow. Also, some days it feels numb and tingly, but not in a good way.
I told my OB about it but she didn't really seem to know anything nor did she seem to care to find out. It just feels like something is not normal- I know that the surgery is usually performed on males who don't have this problem later in life- I wonder if the surgical practices 20some years ago were outdated and now I'm feeling the effects of it..?

[DavidCrj]

I had the same operation at 6-weeks. I have a 5-6 inch scar across the right side of my stomach. I am a male unlike the other 3. I have noticed when I do cardio workouts, I get very sever cramps/pains in my scar. It sometimes feels as if the scar is ripping open (painful, right?)

Now sure what it may be, no one else seems to know either.

[Danielle27]

Hi I am 27 F and had Pyloric Stenosis at 2 weeks. my scar is also about 4 inches acriss and on the right side right under my diaphragm. I have been told that the surgery was supposed to be a permanent fix but that also as I age and develop more scar tissue, I will eventually need another surgery to remove scar tissue and release the muscle and fat that has grown on top of and on the scar. I also tend to have spasms and a pulling sensation sometimes during/ after exercise, eating, or just randomly. Mine is not an intense pain at all though just kind of a weird feeling. Whenever I get the stomach flue or drink a little too muc I tend to have trouble ending the vomiting unless I take phenigran or another anti- nausea medication. I also have Irritable Bowel Syndrome so I wonder if there's any correlation there?

So two questions-
Have any ladies out there who had PS as an infant carried and delivered a baby? Was just wondering if that effected your scars in any way. My hubby and I are considering starting a family soon and that scares me a little, with the extra weight in the belly could it pull too much???

Also, has anyone out there had there scar surgically "released"? If so, for what reasons and how bad was the process?

Thanks All!

[EmBoswell]

I am a 27F and had pyloric stenosis at 3 weeks. I too have a 4 inch scar on my right side, just below my rib cage. I am the third child, with two older brothers. My male cousin also had it. About six months ago I had my first "attack." I thought it was my gall bladder. I had just eaten some spicy meat and attributed it to that. Today I had it again. I talked to my dad who damaged his pylorus (the same muscle that thickened in us as babies) in an auto accident about 20 years ago. He now has acid reflux and alot of stomach problems. I was describing the pain I have been having and said it was right under my rib cage and he picked up on the similarities and suggested I see the doctor. He said it could be related. I haven't been vomiting, but have had severe, acute pain right below my scar. The area around my scar is very swollen and tender and I can feel a lump underneath it that moves when I press on it (try pressing on your thumb joint...the tendon above it that moves...that is what it feels like.)
My husband and I are also thinking of having children soon, and I am now concerned. I'll be going my doctor Monday and will post any results. Anyone interested in keeping in contact on this? Anyone had any updates since their post?