stomach pain and no clue

[elsa103]

Hello, im new to this forum but glad im found it as im hoping someone can shed some light as to what is going on with me...............Iam a 36 year old mum of 3 and about 3 years ago i lost 2 stone in 1 month and the problems started. had vague lower abdominal pain and facial flushing, had colonoscopy and laporoscopy all normal, few months later pain accross my back right side pins and needles and numbness, went to neurologist all tests normal. was refered to rheumotologist for auto immune issues, all bloods normal. xrays show hyperinflated lungs with hyperresonant notes and crackling have reynauds and nail haemorrages???? was refered to gastroentologist for severe central upper abdominal pain, has ruled out gallstones. Had upper endoscopy and a submucosal bump was found on the greater curvature of the stomach, ct showed thickening of stomach wall. Gastroentologist carried out endoscopic ultrasound which showed nothing the lump had gone??? have been told that it was probably the spleen indenting or another organ and no further investigations are needed, but im in soooo much pain, its difficult to exhale as the pressure and pain at the top of my abdomen is so bad, am taking co codamol, lansoprazole and recently anti spasm medication, but non of which seem to help.......my tummy gurgles and growls constantly whether i eat or not and the pain is so uncomfortable and I just dont want to eat anything, i have tried gentle excercise and eating small meals during the day and am very careful with my diet but I just get worse, im tired all the time and feel very groggy....i have followed the ibs rules and diets but they dont seem to help and it does not seem to fit the pattern of ibs.......Im desparate to get better but no one can  help me right now so I just dont no what else to try.......Any advise would be fantastic :)

[elsa103]

Had bloods back and clear, no celiac......but now have a lump in my left breast have had a mammogram and all clear, dr explained about breast changes etc and thinks it a benign lobule but doing ultrasound......I had 3 horrendous nightsweats about 2 weeks ago and the lump appeared and hasnt changed since. I just feel so ill my back pain is so bad its hard to breath and the upper abdominal pain is so uncomfortable, Its all just spiraling out of control and im so scared that when they eventually diagnose me it will be too late.....

[elsa103]

Thankyou so much for your advice. Im not sure if any of my bloods have been specific for celiac, i know that i have lots of auto antibodies tests with the rheumatologist for lupus etc which have all been negative. And biopsies were taken on the endoscopy but i dont know whether they tested for celiac. I would make sense though. the abdominal pain is always upper central just under near my where my ribs join and its constant made worse about an hour after i eat anything and i feel so groggy and tired and my nose and cheeks go red when the pain is at its worse. I am due to see my gp on monday so I will definitely ask for the blood tests that you have suggested. I do hope this is the reason and ii can end months and months of pain and despair.......:)

[gbruton]

Have your Dr. run an IGa and EMa blood test to check for celiac disease, also have a food allergies test run. My sister and I were both experiencing abdominal pain and my sister broke out from head to toe in a horrible rash, I lost 26 lbs in 3 months due to the abdominal problems. My sister has been diagnosed with celiac disease, my test was inconclusive due to the liquid diet I had been on for weeks but the food allergy blood test show allergies to gluten, wheat, malt, barley & rye; all foods that celiacs must avoid. The upside to the story is that after months of illness, we are both symptom free and there are no medications to take. You simply change your diet to a gluten free diet and the symptoms will resolve. If this is the problem there is an abundant amount of information to help you maintain a gluten free diet. Statistics I have read indicate that most people are misdiagnosed for 8-10 years with MS, Lyme disease, irritable bowel syndrome, etc before getting the correct diagnosis when all it takes is a couple of blood test. I hope you find relief soon, the diet is restrictive, but it is well worth it to be pain free.

[elsa103]

Thankyou so much for your reply. I am with a lung specialist also because I have had back pain and pleurisy type symptoms with sharp pains when breathing and was coughing blood in July. Pulmonary embolism was ruled out with d dimer test and was referred.....The lung specialist did all sorts of breathing tests and on examining found the hyperressonant sounds and dullness and crackling.......A ct scan was done of the chest and abdomen and although no obvious tumors they were concerned about the thickness of the stomach wall, which I guess has been ruled out now....I did a peak flow monitor for 2 weeks which showed a morning dip about 350 then about 500 in the evening. He believes small airways are narrowed and has given me a preventer inhaler and I have had to monitor my peak flow monitor again which seems more stable, apart from when then upper abdominal pain is severe it the peak flow dips to about 450......My concern is really the first endoscopy where i was told that the lump was a tumor of some sort and then it cant be seen when I had a second endoscopy ultrasound......its all very confusing........and the pain is so debilitating......The lung specialist has mentioned asthma but he didnt seem convinced and the crackles are on both lungs and i do have a slight wheeze on exhaling......im hoping this is all sorted soon as it is a living nightmare and is sooo tiring. Thankyou again im glad i found this forum and im not alone :)

[mammo]

Have you seen a lung specialist regarding your hyperinflated lungs?  Sometimes it is nothing and just the result of being told to take a deep breath, but there are also some very serious causes and your cause needs to be determined.  Everything Gastro has been ruled out and now it's time to look elsewhere.  Your next test should be a "lung function test" and go from there.  You also need to determine the cause of the hyperresonant sounds.  Raynauds causes cold feet and hands and is more of a nuisance than anything unless during one of the episodes you develop an infection on a finger or toe.  As for the hemorraging of the nails....I don't know.  But you do truly need to see a lung specialist and maybe that will lead you to why this is happening.  I know it's frustrating and I wish you all the best.