My son just turned 7 years old and has had a fever since June 3rd... it has a cycle of fever, rash, and recently the lymph nodes joined the fun. We are on the third cycle of such episodes and just got referred to the infectious disease doctor. Blood work has been done 3 times, no mono (altough the pedi says she KNOWS it is mono), we even looked into lymphomo and lukemia - not consistient with those either. Not sure what to do, or who to see next. Post a comment if anyone gets an answer - I'm dying to have this mystery solved!
TONSILS! My daughter had recurrent fevers from Feb-Sept like clockwork every 4 weeks, up to 105 degrees. Usually, no other symptoms. All tests were normal...I did research and found out tonsils/adenoids can cause the problems. The ENT (who had never heard of this disease, PFAPA) removed the tonsils/adenoids, and she has been fever free for almost 5 months! Hardly sick..and, she was a very sickly child-picked up everything!! Thank god I made the decision...but, do your homework! I had to go to my pediatrician, an infectious disease dr. and 2 ents before I found someone to listen to me! Good luck to all!
Hello-I saw your post. Did your doctor find out anything about your child's recurrent fevers? My daughter, almost 5, has been having recurrent high fevers for the past 3 months. We have had 3 blood tests, and no answers. She had walking pneumonia one time, and a really bad cold the other time, but 2 other times she had no other symptoms, other than fever. I don't know what to think!
My 4 yr old daughter has also been having fevers about every 2-3 wks for the past 6-7 months. No other symptoms either- except for lethargy and a horrible headache. Good luck- hopefully they will figure it out soon.
My 3 year old is also having high recurring fevers for the past few months. They seem to come every 2-4 weeks, lasting about 2 days and with no other symptoms except for maybe a headache (I think just due to the high fever) and maybe wanting to sleep a bit more (also fever related). His pediatrician is working with me on this and I have brought him there in full fever swing and she has examined him and found nothing wrong except for the fever. We also went for 2 rounds of blood tests so far...once while just coming down from the fever and another 2 weeks later when "healthy". Some levels were elevated (including white cell count), but only slightly and he tested negative for mono and strep. Also, I have a 12 month old son who never "catches" these fevers even though the boys are on top of each other all the time. I am so baffled and frustrated and I feel helpless! I noticed on the other chain that some think it's adnoid or sinus related, but my guy doesn't seem to have that problem...I will ask his pediatrician just to make sure. He will also probably have a urine culture done soon too. He actually started to spike a fever again this morning even though you'd never know it by the way he's acting. I'm waiting for his pediatrician to return my call as I write this.
I hope we all find an answer to this mystery soon.
Best of luck to you and please keep posted on anything new.