Medullary Calcinosis

I am a 33 year old mother of 2 under the age of 6. For the last 5 years I have been battleing Kidney Stones, but the past 2 years has been crazy. Last year I had 27 ER visits and 2 hospitalizations and this year so far 7 ER trips and just  got out of the hospital after a 5 day stay where they diagnosed me with Medullary Calcinosis. They also ran some test and told me I also had Medullary Sponge Kidneys (which not sure they are the same) & that my kidneys where only draining @ 70%. It has been an emotional long 2 yrs. I dont know what to do. Im in pain 24 - 7 & im tired and irritable. I guess Im just  trying to find out as much info as I possibly can on the subject. Its really bringing me down. I just want to be a good wife ( i cant even do household chores, etc.) My husband had to take a leave of abcence from work to take care of me & the kids and i just feel so guilty. I want to be able to do normal things and this diagnosis has just turned my world upside down. So if you have been in my shoes or know anything about MC. I would love to hear from you, to know that im not alone. I am a Christian, I know that God is the Ultimate Healer and I am just trying to leave it in his hands, but im only human. Thank you for reading and look forward to reading any information you may have for me.

[bubbazlady254]

i just got dianosed, all i can say is i am sooo scared, is there anything i can do 4 the pain, so i can be a wife n mother to my 3 lil ones?