Renal Agensis

My age is 30 years. Recently I was pregnant. In 8 month doctors found that
baby kidneys and UB is not visible. Even the water was scanty. Legs were
closer and the sex of baby was not found. What is the reason for all these  
defects? Now I want to know that all this will happen in my next pregnancy .
Use of folic acid may decrease the chance of risk in next pregnancy ?

[tuti]

Shabida, I am not a doctor. I am a mother who has lost one newborn (to a very rare congenital disease) and three other pregnancies. I believe the first thing you need to do is to find out if your baby's condition has a diagnosis--a name. From there, you should research the diagnosis so you know what questions to ask the experts, and then speak to a geneticist (not a genetic counselor; a geneticist has much more expertise and training) to see if the condition is hereditary or not. If it is hereditary, find out what the mode of inheritance is (dominant vs. recessive). This is the only true way to find out if this condition will repeat itself in future pregnancies, and if it does, with what frequency (50% vs. 25%). Folic acid helps in the prevention of spina bifida, but it is unlikely to have had anything to do with your baby's renal condition. Furthermore, the standard dose of folic acid in prenatal vitamins has been carefully studied and is therefore sufficient--no need to raise the dose. Shabida, you have not done anything wrong during your pregnancy. This is not your fault. These things happen in nature. It's sad and unfair, and sometimes it's random (only ever happens once,called a spot mutation) and sometimes, like in my case, it's a genetic condition that repeats itself. I'm so sorry for your loss, Shabida. Best of luck to you.

[ngonzalez212]

hi my name is natasha and i just loss my baby due to renal agenesis as well a month ago.  i found out during my fifth month about this disorder and chose to have my labor induced because the baby has no chances of survival with this disorder. Its also known as potters syndrome. i advise you to speak to a genetesis like she said and a genetic counselor as well because they will be able to help determine if it will reacurr. im still trying to learn more about it but i do know that their is no chance of the baby to survive. again im so sorry for your loss and you can email me at any time at ***@****. hope to hear from you soon. god bless you

[shabida]

Thanks Natasha. This was your first pregnancy. Do u have any child. What u r going to do now. I want to talk with you personally. Where is ur email id.

[ngonzalez212]

sure i  would love to talk to some1 who went through what i have. you can go to my profile and write to me from there or click on my name or ***@****.