Genetic Disorders Expert Forum
Wolfs-Hirschorn disease....my 17-month old granddaughter has it
About This Forum:

Questions in the Genetics Forum are being answered by medical professionals and experts. This forum is for questions and support regarding a person’s predisposition to a variety of medical conditions such as Ashkenazi Jewish Diseases, Bleeding Disorders, Blood Clotting Disorders, Cancer Genetics and Hereditary Cancer Syndromes, Chromosome Abnormalities, Congenital Birth Defects, Cystic Fibrosis, Family History, Fragile X Syndrome, Infertility, Newborn Screening, Rare Genetic Disorders, Prenatal Screening and Testing.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
This expert forum is not accepting new questions. Please post your question in one of our medical support communities.
Blank Blank

Wolfs-Hirschorn disease....my 17-month old granddaughter has it

anyone else dealing with Wolfs Hirschorn? My daughter has a hard time finding support groups online even...
886824_tn?1253740254
The 4p- Support Group is an non-profit association of families of children with 4p- (also known as Wolf Hirschorn syndrome). From their website: "We offer phone support, newsletters, national biannual gathering and regional meetings to meet and exchange experiences and information."

Their website might be a good place to start. We wish you and you daughter the best.
Blank
Continue discussion Blank
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank