Genetic Disorders Expert Forum
Wolfs-Hirschorn disease....my 17-month old granddaughter has it
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Wolfs-Hirschorn disease....my 17-month old granddaughter has it

anyone else dealing with Wolfs Hirschorn? My daughter has a hard time finding support groups online even...
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The 4p- Support Group is an non-profit association of families of children with 4p- (also known as Wolf Hirschorn syndrome). From their website: "We offer phone support, newsletters, national biannual gathering and regional meetings to meet and exchange experiences and information."

Their website might be a good place to start. We wish you and you daughter the best.
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