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My daughter has a connective tissue disorder that has yet to be diagnosed. She also has Chiari malformation and Tethered Cord which are common in EDS patients.
She can bend her thumb to her forearm, and a few of the things you showed in the pics. However, her skin is not as stretchy as yours, though. Is your skin velvety??
She is scheduled to see a geneticist very soon.
I hope you don't have this, but if you do, find a good geneticist. I know of a good one in Maryland if you are nearby.
My daughter has a connective tissue disorder that has yet to be diagnosed. She also has Chiari malformation and Tethered Cord which are common in EDS patients.
She can bend her thumb to her forearm, and a few of the things you showed in the pics. However, her skin is not as stretchy as yours, though. Is your skin velvety??
She is scheduled to see a geneticist very soon.
I hope you don't have this, but if you do, find a good geneticist. I know of a good one in Maryland if you are nearby.
Blessings,
Rebecca