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Has anyone heard of this dieases? I've been having clotting problems for as long as I can remember. From long lasting regularRegular insulinnoseNose fracture bleeds as a child. Up til having 4-5 month long periods as a preteen - teenager. I wasn't told until last year tht my problem was called vonVon willebrand disease willebrand's diease. In my town all the doctors have told me that there is no cure. But in another town doctors are talking about possible cure? I'm just wondering if i'm getting mislead?