lab reports

[marialou]

does anybody know how i would go about getting hold of lab reports documenting my daughters diagnosis and should it be pretty straight forward?
i have enquired already and was told the specialist would get back to me but they havent and i had a feeling i would have some trouble with this. i guess i would like to know the proper path to go to obtain the information i require before going in guns blazing

[mammo]

You are entitiled to any and all tests, reports, etc involving your daughter.  Call her doctor and tell him you want a copy of any and all records.  They may charge you a fee, then be the perverbial "squeaky wheel."  Ask how soon they will be available, and I would personally pick them up and tell them this.  Copying your daughter's reports will be at the end of their lists of things to do, BUT if it's only the labs you want, this should not be an issue, and is quickly done.  I would call them at least 2 x a day, they will get you what you need just to stop being bothered by you.  I've been on both sides, so I know how it all works.  You may not understand a lot of what is on the report, but everything is worth getting a second opinion, and I get the impression you need one.  Be aggressive on this, the law is on your side so don't allow them to ignore you, or push you around.  If I were you (and I've been thru this) I would call and explain that you had requested a copy of the reports, and you are sure they must be ready by now, and you will be stopping in at such and such time to pick them up.  Then ask them to have them available for you at the front desk.  

[marialou]

dear mammo,im so glad you have taken time to respond and say what you have as i knew deep down this was the case. without sounding unbelieveably paranoid i knew i would have problems at some level in trying to locate any records regarding any medical issue of the last 17 years with either of my 2 gorgeous daughters no matter what it would be i would be asking.   when..like you say,i have every right and everything also is now computerised and should totally be on file and as a parent it should automatically be forwarded on without any form of delay whatsoever.i have email.etc..etc...
it isnt happening.i do ring.so many specialists my daughter is under,and i am fobbed off.
there is so much missing with regards to my childrens medical history and background that i dont think these specialists realise im comin for them..letter for letter,word for word.
someone is accountable.its took me so long and i know more about my daughter than any consultant specialist.i accept her syndrome and its rareity. what i dont except is the total lack of support and because none of them do know whats actually wrong the refusal to even committ to help or be involved..i wouldnt know where to begin.its just shocking.only because theres so much. its just not right

[mammo]

I know exactly what you are enduring.  My oldest son inherited FAP from his father who died from it.  I thought he was getting the best care, and if his doctors didn't know the answer, they would either find it, or refer us to someone else.......WRONG!  Their egos are too big, and they cover for each other. By the time I sought a third opinion, it was too late for my son.  His doctors even admitted to one botched surgery, and weren't treating him for a serious infection, which almost took him from us.  He had to endure 6 hours of surgery at another hospital to clean up the infection, and they weren't sure he'd even survive that.  Due to the botched surgeries, withholding vital medical information from us, and their negligence, my son died a horrific, agaonizing death.  We have to be advocates for our loved ones, because they are only a number to the doctors.  It's been so painful to think that I trusted these surgeons to take care of my son, and all they did was kill him. I have worked for doctors most of my life and have seen first hand the negligence, abuse, even laughter over an elderly patient dying during a simple procedure, and this is when I washed my hands of these egotistical animals.  YOU KEEP GOING, MAKE YOUR VOICE BE HEARD, HOLD THESE PEOPLE ACCOUNTABLE!!  DON'T STOP UNTIL YOU ARE TOTALLY SATISFIED AND HAVE ALL THE ASWERS, AND NEVER ALLOW THE MEDICAL PROFESSION TO BULLY YOU!  I WILL BE CHEERING YOU ON........