Chronic Liver disease - end stage

We are at a complete loss. My dad has end stages of chronic liver disease (fatty liver) and has been in hospital for the last 6 weeks. It has been a roller coaster ride and continues to be. Over the last 5 weeks, he would be good one day and confused and not with it the next. On Sunday, he took a turn for the worst and was completely bedridden, did not eat or drink fluds and slept the whole day. It was decided we would take him off his treatment and commence palllative care. We honestly thought we were going to lose him on Sunday night. Today is Wed and without any treatment for last 4 days  and  having only a little fluid and no food,  he has been coherent / alert and was even able to stand and take a few steps. He has had some custard and has drank fluids. Still can't swollow is is not having medicine.

We are at a complete loss and don't know what to do. Please help. Can someone share there experiences.

[BluCrystal]

Please see my post titled Mary Elizabeth Larson. :) - love to you - Blu

[reckless71]

Update: Early on Saturday morning my beautiful dad peacefully passed away. He fought right to the very end. We told him to let go and we will be fine. He was so worried about mum so we kept re-assuring him that she would be fine and we would look after her. We are grateful that he didn't seem to be in pain - the doctors and nurses did a great job in managing that.

At last early on Saturday morning at 4.30 am, he took his last breath and found peace. He finally knew we would be all ok even though we would find it tough and that mum would be looked after.

I know our loving is looking over all of us and he is in a beautiful place. God bless you dad.

[finchesandrainbows]

Thank you for sharing your story. My mother died of liver failure 5 years ago. Even after all the years of drinking, fighting, abuse, neglect and sorrow she nor anyone else should have to die such a horrific death. I am glad you were with your father and it was peaceful. The thing about death that no one ever tells you is that it never "gets easier"  you just become very intimate with saddness. You share space with your grief like a roommate and you learn to live together. Sometimes it will win but eventually you meet in    the middle-you adjust until it becomes a part of who you are. It is not an easy process to lose someone especially in such an excruciating way. My mom didn't see me get married, she will never know her grandchildren or my husband. But I know she has no more pain and that is enough for me.
I wish you well- it's a hard journey but you aren't alone