Liver Failure and cirrhosis death, anyone go through this?

[Mary Z]

If you have lost a friend or close relative to liver failure and cirhosis, please share with me the amount of time they had in "end stage". We are trying to get some idea of what to expect....I have posted on the liver forum...but decided to ask here as well. Thank you all for your time!
Mary Z

[leeaston11]

my partner is 54 and has been on the transplant list for 4 years. he is getting drained every 4 days and now needs to have  his lungs drained also
he is having swelling in his feet and legs he started the medicine for his ammonia levels he sleeps all the time is very confused some times I am not sure what to do we live in a small community and the transplant hospital is a 10 hour drive from us I have been talking to them but his blood levels are not showing them how sick he is. we have 5 children between us and one grandson he is very scared as he knows his kids need him still 3 are still under age. I am so scared that he is getting worse and not wanting something to happen to him without calling family to come and see him any advice would be appreciated regarding the end stages of this horrible disease  I have been reading all of your posts they are very touching and scary at the same time  bless all of you

[mony4182]

hi, I'm sorry you had to go through this as well.  It's now been 7 months and still feels like yesterday yet a hundred years ago at the same time.  I still wonder if there is something I could have done sooner....if we had gotten to the doctor sooner.....I don't blame him, I'm not mad at him, I hope he is finally at peace after the life he had, but it doesn't mean that I'm not dead inside with him gone.  I miss him more than any words could ever express.   There were signs there way before he ended up in the hospital, probably a year or more and was in the hospital for a week, died in the ICU, but he was coma like for nearly two days....but he knew I was there.  There is a site, YWBB.ORG, it is for young widows in numerous situations.  I lost my fiancé, not husband, but I still consider myself a widow.  It has been a life saver to find the site and find other younger widows as well.

[fbeth518]

My husband, age 53, passed away last year in September.  He was in hospital for two months, the last six weeks in a coma.  He had jaundice, ascites, cirrohisis, portal hypertension and in the end his liver and kidneys failed.  It was an agonizing death and I am still haunted by the memories of that time.  He was my husband for 29 years.  I loved him very much.  We have two wonderful children and grandchildren but nothing, nothing could get through to him.  When he finally decided to get help, it was too late for his body.  We miss him every day.

[pdxtina]

hi mony...my boyfriend (age 29, same as me) passed away on march 24 2013 from alcoholic hepatitis/liver failure. it seems we went through similar hells...i am still struggling with it greatly and blame myself quite a bit, even though my rational mind tells me its not my fault. he was alert and with it until i gave him his first dose of morphine when he started on hospice...all went down hill from there. its almost comforting to know that i'm not the only young person to lose their partner to such a disease...

[Danielle_VA]

jimbo my brother is only 33 he was admitted to the hospital 3 weeks ago, The Drs say end stage liver disease he has the ascites, jaundice, some fluid in his lungs. I am watching him become more lethargic he just sleeps all day, and when he wakes sometimes he is not realistic as to where he is or how sick he is, sometimes combative and other times some what helpless, gone is most of his spunk, Im hoping he is sleeping so much to get better. His blood pressure keeps getting lower and lower today only 45/70. The doctors have told me he will need a liver transplant. In the beginning I thought we could work thru this, but he seems to be getting worse instead of better. I am really getting scared I am going to lose my little brother. I was wondering if you could give me some insight, is this what happened to your brother?

[Danielle_VA]

jimbo my brother is only 33 he was admitted to the hospital 3 weeks ago, The Drs say end stage liver disease he has the ascites, jaundice, some fluid in his lungs. I am watching him become more lethargic he just sleeps all day, and when he wakes sometimes he is not realistic as to where he is or how sick he is, sometimes combative and other times some what helpless, gone is most of his spunk, Im hoping he is sleeping so much to get better. His blood pressure keeps getting lower and lower today only 45/70. The doctors have told me he will need a liver transplant. In the beginning I thought we could work thru this, but he seems to be getting worse instead of better. I am really getting scared I am going to lose my little brother. I was wondering if you could give me some insight, is this what happened to your brother?