i . have been diagnoced with end stage liver disease and have not yet found out if i am a candidate for a transplant.
i was wondering what to expect if i do not get a new liver or if i decide not to have the transplant. what am i to expect of my death. pain level, etc. can i stay at home or would it be better for family if i werent around them. any personal experiences with this would be appriciated. i need to know how to prepare right now while i still can.
I think it depends on what you want and your family. I hope you are able to get a transplant. This would be wonderful. But, I do think you need to know all of your options. Just because you consult with hospice doesn't mean that is a solid decision. You can see what they have to offer. I do know they not only are there for you but very much there for your family also. There is nothing wrong with a Plan A,B,C. Sometimes, unfortunately, insurance companies say how long you can be in the hospital. That is something you will have to check on. I am sorry you are having to do all of this and will be praying for a transplant option-if this is what you want. I wish you all the best.
I am 50 yr old female. Was diagnosed 9 yrs ago with cirrohsis. Maintaining fair.but have esoph. Varacies they want to band. Not wanting to do that for fear of infections. Also, I did not get it fro. Drinking(NASH)and will be good candidate for transplant. But dont think I want one. The rejection meds I hear are hell on you, and other complications could make you even sicker. Quality vs quantity??
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