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Can endometriosis be in the spine?
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Can endometriosis be in the spine?

Can endometrios can be in the spine?  I have multiple haemangioma in lumbar spine plus lower back and hip pain.  Feel I'm on the route to disability as walking is getting so difficult now.  I had a laparoscopy two years ago and had deep endometriosis removed from sacro-iliac ligaments and ovary.  Gyn then discharged me with no follow up, saying the problem was sorted.  Since then the pain has got unbelivably worse, and some days I can barely walk.  I also cannot urinate properly and now have to sef-catheterise daily or I get infections.  Last year spent a week in hospital with urinary retention.  From being super fit and a regular at the gym, I am now very weak in the hips, abdomen and legs, and nothing I do strengthens them.  Was told my endometriosis was only mild and it is all gone now so am complaining about nothing.  Just think doctors don't believe me any more.  Now I can't bend, squat, walk distances, I limp and get stopped in my tracks by hip pain, but my doctors think I've always been this way and am just unfit.  What can I do about assumptions and stereotypes?  Feel like a woman twice my age.  Gyn said it was impossible for endo to be anywhere outside reproductive regions. Kind of feel this is too much of a coincidence as all my problems started from the surgery.  Any suggestions?  
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Hello,

It would be the first reported case to find endometriosis in the spine.  There may be other reasons you are suffering those symptoms not related to endometriosis that need to be investigated.  To help determine if your symptoms are all related to endometriosis, a trial of a medication called LUPRON (makes one temporarily menopausal) to see if your symptoms improve will help sort things out.

Best wishes,

Dr. Downing
2 Comments
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Hi , Just found this site, I also suffer from Endo, I now walk with a cane and i am in constant pain, i dont know if you can get endo in the spine i was on here just looking for
some more answers...

I dont know if there is a forum where perhaps we can chat , I am in Scotland , where are you ?

Kindest Wishes
Claire
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407991_tn?1202595632
just so you know, i have endometriosis on my lumbar and thoraric spine. it took 4 years to diagnoes! i had been told i had everything from lukemia to metastaic disease to arthritis but nope it was endometriosis.
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Doctor's Answer
by Keith Downing, MD


, Feb 15, 2008 09:41AM
Hello,

It would be the first reported case to find endometriosisEndometriosis in the spineChanges in spine with age
Lumbosacral spine ct
Lumbosacral spine mri
Lumbosacral spine x-ray
Meninges of the spine
Myelomeningocele (children)
Neck x-ray
Skeletal spine
Spine mri
Thoracic spine x-ray
Ultrasound, normal fetus - spine and ribs.  There may be other reasons you are suffering those symptoms not related to endometriosisEndometriosis that need to be investigated.  To help determine if your symptoms are all related to endometriosisEndometriosis, a trial of a medicationAllergic reactions to medication
Drug allergies
Drug-induced hypertension
Getting a prescription filled
Home pharmacy
Inhaler medication administration called LUPRON (makes one temporarily menopausal) to see if your symptoms improve will help sort things out.

Best wishes,

Dr. Downing
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clintnkari left a message on here on march 17th saying she has been diagnosed with endometriosos on her spine. Don't you feel stupid now Dr????



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